Myositis and Mental Health

Community Tips

TMA recognizes the impact that a myositis diagnosis and continued disease progression has on the emotional wellbeing of patients, families, and care partners. Help others navigate these challenges by completing this form and submitting your insights on mental health and myositis.

Share what you and your family do to overcome isolation, connect with others, seek support, and manage stress. Questions? Email tma@myositis.org.

Thank you for sharing!
1.What have you learned on your mental health journey in myositis?
2.How do you address your mental health? Does your toolkit include tracking moods and symptoms, prioritizing sleep, practicing mindfulness, committing to self-compassion, or using another emotional wellness strategy?
3.What advice would you like to share about finding support? Do you have tips for a myositis patient who is looking for a therapist?
4.What advice do you have for myositis care partners, especially as it relates to the risk of caregiving burnout?
5.What do you share with your friends or loved ones in moments when they need support?
6.What resources, apps, sites, and/or organizations do you rely upon for credible information and helpful tools for mental health?