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PWDA Survey: Digital Health Services Usage and Privacy Concerns for People with Disability
Australian Digital Health Agency Project

Introduction

People with Disability Australia (PWDA) is a national organisation led by and for people with disability. We are a cross-disability organisation, which means we represent people with all types of disability.

Why is PWDA conducting this survey?
The Australian Digital Health Agency (the Agency) wants to make its digital health tools and apps easier to use for people with disability.

PWDA is working with the Agency to improve their tools and apps. We want to better understand how people with disability use digital health services provided by the Agency, and how privacy and security concerns may affect their experience.

This survey will close on Monday 27 October at 9am (AEDT).

Who can complete this survey?
People with disability currently living in Australia can complete this survey.

How long will the survey take?
It takes approximately 10 minutes. An asterisk (*) means an answer is required.

What will happen to my information?
The results of the survey will be used to inform our report back to the Agency.

The feedback you provide will be de-identified, which means you will not be identified in the data.

Your privacy
All information will be kept confidential and in accordance with our privacy policy.

Our Privacy Policy and Privacy Collection Statement are available at https://pwd.org.au/about-us/policies/privacy/. An Easy Read version of both documents is available at the above link.

How to have your say
PWDA can offer 1:1 interviews for those who would prefer to provide feedback in a different format. Please note: 1:1 interviews are limited, please contact us to arrange a time.
Phone: 1800 422 015
Section 1: About You
This set of questions will tell us a bit about you.
1.Do you identify as a person with disability? (Tick one).

This survey is only for people who identify as a person with disability. If you answer no to this question, you do not need to complete this survey.(Required.)
2.If you answered yes, please tick all descriptions that apply to your disability. (Tick all that apply).
3.How do you describe your gender? (Tick all that apply).
4.What is your age group? (Tick one).
5.Do you identify as being an Aboriginal and/or Torres Strait Islander? (Tick one).
6.Do you identify as any of the following: (Tick all that apply).
Section 2: Usage of Digital Health Services
7. Are you aware of the following digital health services? (Tick all that apply).
8.Which of these digital health services have you used in the past 12 months? (Tick all that apply).
9.What is your primary method of accessing digital health services? (Tick one).
10.How often do you use these digital health services? (Tick one).
11.What do you mainly use these digital health services for? (Tick all that apply).
Section 3: Accessibility and Usability
12.How easy is it for you to use these digital health services? (Tick one).
Very easy
Somewhat easy
Neutral
Somewhat difficult
Very difficult
13.What accessibility tools do you use when using these services? (Tick all that apply).
14.Have you experienced any accessibility barriers when using these digital health services?
Please share your experience with us.
Section 4: Privacy and Security Concerns (Expanded)
15.How sure are you that your personal health details are kept safe when you use digital health services? (Tick one).
Very sure
Somewhat sure
Neutral
Not very sure
Not sure at all
16.Have you ever worried about or noticed a problem with your privacy or safety when using digital health services? (Tick one).
17.Who do you think should have access to your My Health Record? (Tick all that apply)
18.Do you think you have enough control over who can see your health information? (Tick one)
19.Do you know how to manage privacy settings in My Health Record or the my health app? (Tick one).
20.If you answered yes, how easy is it for you to understand and manage privacy settings in My Health Record or the my health app? (Tick one).
Very easy
Somewhat easy
Neutral
Somewhat difficult
Very difficult
Does not apply
21.What would help you feel safer using these services? (Tick all that apply).
22.Do you trust the Australian Digital Health Agency (the Agency) to protect your health data and keep it safe? (Tick one).
23.How do privacy concerns affect your use of digital health services? (Tick one).
24.Would you be interested in attending an online workshop or webinar or receiving resources to better understand privacy and security in digital health services? (tick one)
Section 5: Final comments
25.Do you have any ideas for improving digital health services for people with disability?
26.Is there anything else you would like to tell us about your experience with digital health services?