The international TSC surveillance guidelines recommend magnetic resonance imaging (MRI) of the abdomen to check for possible renal angiomyolipomas (AMLs) or cysts. In Australia, the high out of pocket costs of an MRI make it difficult for many people with TSC to access this recommended screening test. TSA is working with a team of health professionals and Rare Voices Australia (the peak advocacy body for rare diseases) to advocate for a medical benefits scheme (MBS) item number for abdominal MRI for TSC screening. If successful, this would provide funding for abdominal MRIs, making them free to access through bulk billing services for people with TSC. By answering the questions below, you can help us with this important work.

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* 1. Have you/your child living with TSC ever had an abdominal MRI?

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* 2. Have your/your child's MRIs been done by:

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* 3. Have your/your child's MRIs been done as:

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* 4. Have you ever had to pay for an MRI yourself?

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* 5. What was the out of pocket cost you had to pay?

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* 6. Have you/your child ever NOT had an abdominal MRI that was recommended by a doctor due to the out of pocket cost?
 

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* 7. Are you/your child living with TSC having some other form of abdominal screening? Please tick all that apply

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* 8. If abdominal MRI was available as a bulk-billed item, would you/your child living with TSC have an MRI?

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* 9. Do you have any other comments that you think are relevant to this issue?

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