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Non-Muscle Invasive Bladder Cancer Patient Survey

Non-Muscle Invasive Bladder Cancer Patient Survey

Bladder Cancer Canada is looking for people with non-muscle invasive bladder cancer to talk about their experience.

The pan-Canadian Oncology Drug Review (pCODR) makes recommendations about whether provincial health plans should pay for new cancer drugs. pCODR will soon be reviewing the use of Imfinzi (druvalumab) in combination with BCG (Bacillus Calmette-Guérin) as treatment for non-muscle invasive bladder cancer. Bladder Cancer Canada will be making a submission to ensure that patient voices are represented and considered during the review process. We are looking for patients willing to speak about their experience.

Does this survey apply to you?
This survey is intended for patients with non-muscle invasive bladder cancer. Please note that caregivers may answer questions on behalf of the patient where the patient is unable or unavailable.

You do not need to live in Canada to respond to this survey; we appreciate input from every patient.

We are also interested in speaking directly with people who have treatment experience with Imfinzi in combination with BCG. Please contact Michelle Colero, Executive Director at patients@bladdercancercanada.org or by calling 1-866-674-8889 if you would be willing to participate in a brief telephone interview.

We would like to thank everyone for helping to ensure that patient experiences are represented in the cancer drug funding review process.

Privacy Policy: To ensure patient privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used for the final submission to government agencies without reference to patient name or any other information that could lead to identifying the patient.
1.Are you a patient or a caregiver answering on behalf of a patient?
2.Have you been diagnosed with non-muscle invasive bladder cancer?
3.In what year were you diagnosed with non-muscle invasive bladder cancer?
4.Have you experienced any symptoms as a result of non-muscle invasive bladder cancer? (If you can, please try to focus on symptoms caused by the cancer rather than by any treatments.)
5.What treatment phase are you in?
6.Are you eligible for platinum-based chemotherapy treatments like cisplatin or carboplatin?
7.What treatments have you received since your initial diagnosis?
8.Please describe your overall experience with these cancer treatments including both positive and negative experiences.
9.Were there any gaps in your treatment, ex. delays in treatment or referral to a physician, difficulty accessing treatments, personal difficulties, etc.? If so, please describe them.
10.Have you experienced side effects as a result of treatment?
11.Have you had difficulties accessing cancer treatments for any of the following reasons?
12.On a scale of 1 (not important) to 5 (very important), how important are these outcomes for your cancer treatment?
1 - not important
2
3
4
5 - very important
Controlling disease progression
Reducing symptoms
Maintaining quality of life
Managing side effects
Preventing recurrence
13.On a scale of 1 (Will Not Tolerate Side Effects) to 10 (Will Tolerate Significant Side Effects), how willing would you be to tolerate new side effects from drugs that can control disease progression or improve overall survival?
14.Have you been treated for bladder cancer with Imfinzi (durvalumab) in combination with BCG (Bacillus Calmette-Guérin)?
15.If you have experience with Imfinzi, would you be willing to participate in a telephone survey to discuss your experience?
16.What country are you from?
17.If you are Canadian, what province are you from?
If you have a primary caregiver who is willing to participate in this survey, please allow them to complete the following questions by themselves.

If you don't have a primary caregiver or if they do not wish to participate in this survey, you can skip this section and click 'Done' at the bottom of the page to complete the survey.
18.What is your relationship to the bladder cancer patient?
19.In your own words, please describe how your day-to-day life has been impacted by caring for a person with bladder carcinoma (e.g. daily routines, ability to work, family obligations, financial impact, etc). Please include anything relevant to your experience as a caregiver.