1. INTRODUCTION

(Approximate time to complete = 10 minutes)

PLEASE COMPLETE THE SURVEY BY
MIDNIGHT SUNDAY 20 JANUARY 2019 AEDT

Do you or someone close to you have haemophilia? Are you interested in gene therapy for haemophilia?

Haemophilia Foundation Australia (HFA) is currently putting together a new education resource explaining the basics of gene therapy to treat haemophilia. This is aimed at the bleeding disorders community.

We would value your help in giving ideas and feedback to develop the resource. 

HOW CAN YOU HELP?
  • Answer the questions in the survey about what to cover in the resource
  • Let us know at the end of the survey if you are interested in joining the HFA review group to give feedback on drafts of the resource.

All personal information you include in this survey will be treated confidentially. Any feedback we show to third parties will not identify individuals but will cover the types of ideas or issues you are commenting on.
 
WHAT IF YOU HAVE OTHER QUESTIONS?

You may find that answering this survey raises questions about your health or treatment that you want to discuss further. 

Who can help you with this?
You are also welcome to contact Haemophilia Foundation Australia to discuss this project further – phone 1800 807 173 or email socallaghan@haemophilia.org.au.

If you have any questions or concerns about this survey, please contact Sharon Caris, Executive Director, Haemophilia Foundation Australia.

E: hfaust@haemophilia.org.au  P: 1800 807 173

 

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20% of survey complete.

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