Cancer52 Patient Survey

INTRODUCTION
Thank you for taking the time to complete this survey from Cancer52. This survey is aimed at people who have been diagnosed with a rare or less common cancer, including childhood cancers. Parents or carers may also complete the survey on behalf of a child or young person who has been diagnosed with cancer.

Cancer52 is a charity and an alliance of over 100 patient groups and charities that represent and support people with rare and less common cancers. By rare and less common, we mean all cancers other than the four most common: breast, bowel, lung and prostate.

You can find out more about us at www.cancer52.org.uk

How we will use the findings of the survey
We will use the findings of this survey in our work to influence Government and NHS policy to improve diagnosis, access to treatments, and quality of life for people with rare and less common cancers.

This survey will not collect any identifiable information. The data in this survey will be stored in line with our data protection and privacy policies. You can view these on our website here: www.cancer52.org.uk/governance

If you need any more information about this survey, or help completing it, please contact info@cancer52.org.uk
1.Sharing the data with relevant Cancer52 member charities

You’ve been sent the link to this survey because the charity you are linked to is a member of Cancer52.

If we receive responses from 20 people or more with the same type of cancer we will share the data we collect in this survey on that type of cancer only with the relevant Cancer52 member charity so that they can understand key issues for the specific groups of people they help. We will not share the data with any other organisations unless legally required to do so.

Please confirm that you are happy for us to share your anonymised data with Cancer52 member charities in this way and are happy to proceed with the survey.

If you do not want to proceed to the survey you can do so by closing this link before entering any information and no data will be stored.
YOUR DIAGNOSIS
2.What type of primary cancer have you been diagnosed with?
50%