Epilepsy Ireland 2025 Satisfaction Survey

Feedback Survey on Epilepsy Ireland

This survey is for anyone who has engaged with any aspect of our organisation over the last 12-18 months. By completing this survey, you are confirming you have engaged with our services.

To best support and represent people with epilepsy and their families, and to continue our journey towards a society where no person’s life is limited by epilepsy, it is very important that we understand the needs of the epilepsy community and measure the satisfaction of those who engage with our organisation.

If you have engaged with our work at Epilepsy Ireland over the past 12 - 18 months, we would greatly appreciate if you could provide some feedback on your experience.

Your responses will help us plan for the future, further understand the needs of people with epilepsy and their families and identify how our services and activities could potentially be improved or adapted. This will ensure that we better serve our community in keeping with the aims of our Strategic Plan (2022-2026).

All responses to the survey are anonymous.

Thank you in advance for taking the time to complete. You can begin the survey below and we recommend reviewing all questions before beginning.

2.Are you?(Required.)

Person with epilepsy

Parent/Guardian of a child with epilepsy

Family member/carer of a person with epilepsy

Working in the education/healthcare sector

Researcher/academic/student

Volunteer (Fundraising or Media)

Other Professional (Please state)

Other (please specify)

5.What county do you live in?(Required.)

6.What aspect of our work at Epilepsy Ireland have you engaged with? (Select all that apply)(Required.)

Support & Information Services (e.g., one-to-one support from Community Resource Officer; sought advice/information; attended adult or parent support group; attended group for young people e.g. Get ChARTy, TeenTime, Young Adult group; attended an online webinar; attended our National Conference etc.)

Training & Education (e.g., attended/organised epilepsy awareness information session / attended a training session on Administration of Buccal Midazolam)

Awareness & Advocacy (took part in or supported campaigns such as International Epilepsy Day, improving access to Free Travel scheme, SUDEP awareness etc.)

Fundraising (e.g. volunteering, organising an event etc.)

Membership (e.g. joined for the first time or renewed membership)

Research (e.g. conducting epilepsy research, participating in EI-funded research)

Website & Social Media (e.g. using our website for further information on epilepsy; receiving our e-zine; following our social media channels etc)

Other

7.Based on your answer above, please briefly outline the nature of your engagement with Epilepsy Ireland (e.g., one-to-one support via a Community Resource Officer; attending a support group; arranging epilepsy awareness session; media volunteering, arranged a fundraiser etc.)(Required.)

8.How would you rate your overall experience of engaging with Epilepsy Ireland during the past 12-18 months?(Required.)

9.Can you please outline the reason why you have given the rating above?

10.Is there anything we could have done differently?

11.Would you recommend Epilepsy Ireland to others with similar needs?(Required.)

Yes

If no, can you tell us why?

12.Do you have any suggestions on how our work might be improved to better meet your needs, the needs of people with epilepsy, their families and the wider community? (Give suggestions in the text box under as many headings as are relevant to you)

Support & Information Services

Training & Education

Awareness & Advocacy

Fundraising

Membership

Research

Website/
Social Media

Other

13.Do you have any other feedback or comments?

14.Your name (should you wish to give it):

Thank you for completing this survey– we greatly appreciate your feedback.

Together, we can achieve a society where no person’s life is limited by epilepsy.

Press the 'Complete' button below to finish and submit your responses.