Voice4MND 2025 Public Awareness Survey
1.
How familiar are you with Motor Neurone Disease (MND)?
Very familiar
Somewhat familiar
Not very familiar
Not at all familiar
2.
Did you know that voice deterioration can be a symptom of MND?
Yes
No
3.
What sources of information have you used to learn about MND? (Select all that apply)
Social media
News articles
Medical websites
Friends or family
Healthcare professionals
None of the above
4.
If you lost your voice tomorrow, what would you miss the most?
Laughing with friends
Talking to family
Saying 'I love you'
Singing in the shower or car
Speaking up at work or school
Telling jokes or stories
Reading a bedtime story
Something else (please specify)
5.
How important is your voice to your sense of identity?
Extremely important
Very important
Somewhat important
Not very important
Not at all important
6.
How important do you think it is to raise awareness about voice deterioration in MND?
Extremely important
Very important
Moderately important
Slightly important
Not at all important
7.
Before this survey, had you ever considered how voice deterioration affects people with MND?
Yes
No
8.
Have you ever heard someone with MND use a recorded or computer-generated voice?
Yes, and it made me think differently about voice loss
Yes, but I didn’t realise why they used it
No
I'm not sure
9.
Would you be willing to support campaigns that raise awareness about MND and voice deterioration?
Yes
No
Maybe
10.
How likely are you to donate to Voice4MND to support our awareness and research efforts?
Very likely
Somewhat likely
Not very likely
Not at all likely
11.
Opt in to receive news and updates from the IMNDA
Yes
No
If yes, please enter your email address