Never Too Young (N2Y) Psychosocial Impacts and Support Survey

Introduction

Purpose
Colorectal Cancer Canada’s (CCC) Never Too Young (N2Y) Program supports people diagnosed with early-onset colorectal cancer (EOCRC) and their caregivers. As attention to patient-centred care grows, CCC is working to better understand the psychosocial impacts of EOCRC across the care journey. This survey will gather insights from Canadian patients and caregivers to inform improvements to the N2Y Program, including new and enhanced resources and services.

Participation & Consent
Participation in this study is entirely voluntary and there are no risks associated with this study.

This survey should take 15 minutes to complete. Once you answer the questions and submit the survey, your responses will be sent to the Manager of the Never Too Young program at Colorectal Cancer Canada.

By completing and submitting this survey, you are indicating your consent to participate in this study and to the eventual publication of the results. There is no need for signed consent to participate.

Data Management
All of your responses to this survey will remain anonymous and cannot be linked to you in any way. Once you submit your completed survey, there will be no way to withdraw your responses from the study because there is no way to link your answers back to you. Study data are returned to the Program Manager in a digital, de-identified format and kept on a password-protected computer. This data will be reviewed and analyzed by researchers at CCC to generate insights from your responses.

Results
Your responses will help us improve the N2Y Program and better support patients and caregivers. While you may not directly benefit from participating, your input will help shape future resources and services. Findings from this study will be summarized in a report to guide program improvements.
If you have any questions regarding this survey or Colorectal Cancer Canada’s early-onset program called the Never Too Young (N2Y) Program, please contact the N2Y Program Manager, Iris Karry, at irisk@colorectalcancercanada.ca.