Thank you for expressing interest in attending Webinar 009, run by Putting Rare Diseases Patients First!(R). So that we can understand the potential audience it would be helpful if you could respond to the following questions. The information will be treated in strictest confidence and will never be shared with other organizations or groups. GoToMeeting login information will be sent to you so that you can take part in the Webinar. This is a Webinar intended for rare disease patients and parents with children who have rare diseases. They do not have to pay to take part. If you are a professional advocate, and would like to take part in this Webinar, we are requesting that you donate a minimum of 5 USD for your participation in this Webinar.