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* 1. What was your gender at birth?

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* 2. What gender do you identify as currently?

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* 3. What is your age category?

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* 5. Which very rare coagulation factor deficiency are you diagnosed with?

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* 6. How old were you when you were diagnosed with a bleeding disorder?

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* 7. What is your lowest factor activity level?

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* 8. Are your parents family of each other before they were married (consanguineous)?

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* 9. How often do you visit the outpatient hemostasis clinic for a regular visit for your bleeding disorder?

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* 10. How often do have a regular telephone call or video call with the outpatient hemostatic clinic for your bleeding disorder (not related to an bleeding event or peri-operative procedure)?

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* 11. In what type of hospital are you being treated for your bleeding disorder?

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* 12. Do you receive regular hemostatic treatment for your bleeding disorder, to prevent spontaneous bleeding? Hemostatic treatment is defined as the administration of medicines to stop a bleed.

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* 13. Do you receive medication once you have a bleeding to stop the bleeding?

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* 14. How many times did you receive treatment for a traumatic bleeding (not related to an invasive procedure and not spontaneous) in the last 5 years?

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* 15. What was the bleeding location?

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* 16. How many times have you had a spontaneous bleeding episode (not menstrual bleeding) in the last 5 years?

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* 17. How many times did you receive treatment for a spontaneous bleeding episode (not menstrual bleeding) in the last 5 years?

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* 18. What was the bleeding location?

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* 19. How many times did you have a spontaneous bleeding without the need for treatment?

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* 20. Have you had an invasive procedure (including tooth extraction) in the last 5 years?

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