Welcome

This survey is your opportunity to tell us about your experiences of living with inherited sight loss. We want to find out more about how sight loss affects everyday life, what support and services you access, and how best Retina UK can make the biggest difference for those living with inherited sight loss.

Please be assured that unless you specifically provide us with your name and address, your answers will be anonymous. If you fill this survey in online, we will temporarily record your IP address, however we will not be able to identify you from this address. For more information, please visit our Privacy Policy.

Who should complete this survey?
You, if you are living with sight loss yourself. If you are aged under 18, a parent of guardian can complete the survey on your behalf.

Assistance to complete the survey
If it's difficult for you to complete this survey, you can ask a friend or family member for help. Or you can arrange for a Retina UK volunteer to help you. You can access this support by calling 01280 821334 or emailing info@RetinaUK.org.uk.

The survey can take 25 minutes or longer to complete, especially if you are using accessibility software or devices. It is not possible to stop part-way and resume another time. So only start the survey now if you have time to complete it in one session. Otherwise, feel free to exit and come back when you have more time.

The deadline for completing the survey is Wednesday 30th April 2025.

To start the survey, click Next.

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