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Severe Pregnancy Sickness - 'Hyperemesis Gravidarium (HG)' Experience Survey

The Carlisle & Eden, and West Cumbria Maternity & Neonatal Voices Partnership Groups would like to hear from you about your experiences of severe pregnancy sickness, 'Hyperemesis Gravidarium (HG)'. HG is a severe type of pregnancy sickness. It affects about 1 to 3 in every 100 pregnancies and can be more serious than regular morning sickness. If you have HG, you might feel constantly sick (nausea), vomit a lot, feel extremely tired, lose weight, and struggle with dehydration. Other symptoms can include acid reflux, constipation, too much saliva, headaches, and low mood. These symptoms can require hospital care. Unlike morning sickness, HG doesn’t always get better by 20 weeks.

We would like to learn about your pregnancy experience with severe pregnancy sickness, how this impacted on you and your family.

We are going to ask you some questions about how NHS staff supported you with your severe sickness/ HG during pregnancy. Everybody's experiences will be different so please include any details that you feel significant to you. This could include experiences with: Your Local GP; community midwife appointments; early pregnancy assessment unit visits visits to NCIC, Antenatal clinic/ ward and A&E; and other wellbeing contacts for support.

Thinking about your experiences can be difficult. Support is available:
Pregnancy Sickness Support | UK Charity
If you prefer not to use a survey please contact carlisleeden@matvoices.uk and we can arrange another way to hear your experience.

Your answers are anonymous, and we follow UK General Data Protection Rules (GDPR). Your responses are stored securely and only our local Maternity & Neonatal Voices Partnerships (MNVP) in North Cumbria can see them.
www.wnecumbriamvp.co.uk
1.Have you experienced Severe Pregnancy Sickness, Vomiting/ Hyperemesis Gravidarium?(Required.)
2.Please tell us the year you experienced severe pregnancy sickness/ Hyperemesis Gravidarium (If you have experienced more than one pregnancy with sever pregnancy sickness, please respond to this survey about the most recent experience).(Required.)
3.How did severe pregnancy sickness/ nausea impact your pregnancy experience? This may include any impact on your daily activities, eating, preparing food, work, family life and mental health, and including feelings about your pregnancy.
4.Thinking about the NHS support you received when you were experiencing severe pregnancy sickness / nausea/ hyperemesis did you feel adequately supported?
5.Please share any examples of supportive good care received during during pregnancy for severe pregnancy sickness/ Hyperemesis Gravidarium.
6.Did health care professionals give you the information and support you needed for your nausea and vomiting?
7.What could have improved the discussion for you about medication for nausea and/or vomiting?
8.Where did you receive information & support for severe pregnancy sickness/ hyperemisis and how helpful was that support to you (tick all that apply)
Very Helpful
Somewhat helpful
Not helpful to me
This question not Applicable to me
GP
Community Midwife
Antenatal Clinic
Antenatal Ward
Antenatal Day Assessment
Early Pregnancy Assessment Unit
A&E
Online NHS information support materials (Badger App; Hospital Website)
NHS paper leaflets
Other non- NHS online information, websites and apps
9.Did you have a medical condition outside of pregnancy which required you to take medication?
10.Did your healthcare team support you to mange your regular medication when you were experiencing sickness/ nausea/ hyperemisis?
11.How well were you supported to make informed decisions about which medications were right for you
12.How often did you find your nausea and vomiting impacted you taking your medication effectively?
13.Did you need to go to the hospital for HG related care and treatment before your booking appointment?
14.Were you referred to a hospital consultant for Hyperemesis
15.If applicable, what was your experience of this referral
16.Which treatments did you get (Tick all that apply)
17.Please describe the care you received whilst in/at hospital
18.Did you feel listened to and involved in developing a plan of care for your pregnancy sickness/ hyperemesis?
19.Were you offered any emotional or mental health support?
20.What could have made your care better
21.Please list where you would like to receive & see information or signposting for emotional and mental health support for Hyperemesis Gravidarium?
22.Has your severe pregnancy sickness / hyperemesis experience impacted on your decision to have more children?
23.Your space for additional comments