INFORMED CONSENT DOCUMENT
PROJECT TITLE: Investigating Caregiver Identification, Cultural Justification for Caregiving, Resiliency, Religiosity and Positive Religious Coping as Predictors of Well-Being in African American Adult Caregivers of Their Parents
INTRODUCTION
The purpose of this section is to give you information that may affect your decision whether to say YES or NO to participation in this research, and to record the consent of those who say YES. Investigating Caregiver Identification, Cultural Justification for Caregiving, Resiliency, Religiosity, and Positive Religious Coping as Predictors of Well-Being in African American Adult Caregivers of Their Parents
DESCRIPTION OF RESEARCH STUDY
Several studies have been conducted looking into the subject of African American adults who care for their parents and their cultural reasons for care, resiliency, caregiver identity, religiosity, positive religious coping, and the time spent in caregiving.
If you decide to participate, then you will join a study involving research of predictors of well-being in African American adults who are caring for their parents. If you say YES, then your participation will last for 15 to 30 minutes online.
EXCLUSIONARY CRITERIA
To participate you should be an African American 18 years or older who has been providing care for a parent for at least 3 months. To the best of your knowledge, you should not have been caring for someone other than a parent, or are under the age of 18 and do not identify as an African American that would keep you from participating in this study.
RISKS AND BENEFITS
RISKS: If you decide to participate in this study, then you may face minimal risk and are not considered to be greater than risks ordinarily encountered in daily life. And, as with any research, there is some possibility that you may be subject to risks that have not yet been identified.
BENEFITS: There are no direct benefits to you for participating in this study. Others may benefit from the findings, as they may provide direction in helping to inform strategies to reduce caregiver burden and identify proactive factors in the African American caregiver community.
COSTS AND PAYMENTS
The researchers want your decision about participating in this study to be absolutely voluntary. Yet they recognize that your participation does require some time. To incentivize participation, you will have an opportunity to be entered into a drawing for a $25 gift card.
NEW INFORMATION
If the researchers find new information during this study that would reasonably change your decision about participating, then they will give it to you.
FUTURE RESEARCH
This researcher may use this information for future research without further informed consent.
CONFIDENTIALITY
All information obtained about you in this study is strictly confidential unless disclosure is required by law. The results of this study may be used in reports, presentations and publications, but the researcher will not identify you.
WITHDRAWAL PRIVILEGE
It is OK for you to say NO. Even if you say YES now, you are free to say NO later, and walk away or withdraw from the study ‑‑ at any time.
VOLUNTARY CONSENT
By signing this form, you are saying several things. You are saying that you have read this form or have had it read to you, that you are satisfied that you understand this form, the research study, and its risks and benefits. The researchers should have answered any questions you may have had about the research. If you have any questions later on, then the researchers should be able to answer them:
Dora Griffin, MA, LPC-S Doctoral Candidate in Counselor Education and Supervision Denver Seminary dora.griffin@my.densem.edu
If at any time you feel pressured to participate or if you have any questions about your rights or this form, then