EMEA and the Norwegian ME Association wants to know more about how ME patients in Europe experience the course of illness.
The survey is open for anyone with an ME diagnosis (ME/CFS, CFS/ME or CFS may be used in your country), those who are under asessment for an ME diagnosis, and those who suspect they may have ME, but have not received a diagnosis yet.
Carers may answer on behalf of patients who are too ill to complete the survey themselves.
Through this survey we hope to gather information on European ME patients:
· When they became ill
· How they describe the course of their illness
· How ill they are
· How they experience access to health care
· What has a positive or negative impact on the course of illness
The survey consists of 18 questions, and takes less than 10 minutes to fill in.
The survey is completely anonymous, and it will not be possible to identify respondents in any way.
We hope that as many as possible take time to answer