Lupus Ontario is inviting patients (or caregivers on their behalf) to provide feedback on their experience living with lupus through its new 2025 survey.
Through the survey we are looking to better understand:
· The impact of lupus on you and your caregivers’ quality of life
· The effectiveness of lupus medications in helping you manage your symptoms, and their side effects
· The cost impacts of lupus and lupus medications to you
· Demographic and general information.
Your feedback will help inform Lupus Ontario’s advocacy initiatives, including our efforts to make lupus-biologic medications more accessible.
The survey will be open until 11:59 p.m. (EST) on February 16, 2026 and is open to all people who live in Ontario.
The online survey should take approximately 10 to 15 minutes. A PDF version of the survey can be downloaded here if you would like to review the questions in advance.
You can pause the survey at any time and pick up where you left off as long as you are using the same browser on the same computer, and as long as the survey deadline has not passed.
Thank you for supporting Lupus Ontario’s mission to help those with lupus live longer, healthier and better lives.
If you have questions, you can e-mail us at info@lupusontario.org
Disclaimers:
· All responses are anonymous.
· If you are under 18, please ensure you complete the survey with a parent or guardian.
· If you are a caregiver of a patient with lupus, please respond to all of the questions in the survey regarding the patient experience on behalf of the patient who you provide care for.
· A summary of responses may be shared with some pharmaceutical companies who have support programs for lupus patients.