FAST - IEP Liaison Program Intake Survey Question Title * 1. Dear parent and/or family member, Thank you for contacting the Foundation for Angelman Syndrome Therapeutics. FAST is a nonprofit organization founded by parents and run by an all-volunteer board. We are here to assist you as you transition your child into the school system. We hope to assist you understand the special education process so that you can become your child’s best advocate. We hope this information will clarify your questions and help you address your concerns. You are not alone in this process! FAST is here to encourage and support you as you navigate the special education process and learn about your critical role. We have eight questions for you, and we sincerely appreciate your input and participation.Sincerely,The Foundation for Angelman Syndrome TherapeuticsAs we begin the survey, FAST would like to know some general information to support the services provided with our IEP Liaison. Parent / Guardian Name(s) Child's Name Best Contact Number Email Address Address City State ZIP OK Question Title * 2. What is the age of your child? 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 OK Question Title * 3. What is the genotype of your child with Angelman Syndrome? UBE3A deletion UBE3A mutation UPD (paternal uniparental disomy) UBE3A imprinting Clinical diagnosis OK Question Title * 4. Overall, how prepared do you feel as the parent/caregiver to enter your child into your school environment and engage in IEP discussions with school staff? A great deal A lot A moderate amount A little None at all OK Question Title * 5. Which of the following area(s) of entering the education system are you concerned about? Please check all that apply. Your response will help tailor our IEP Liaison services to best meet your and your child's needs. Start and end times of school day / Duration of school hours Transportation (ride/trip duration, Heat/cooling issues, medical intervention needs during transport) Need for communication device Physical, speech, occupational, vision and/or behavioral therapy hours 1:1 supervision Feeding and/or hydration issues Safety / Skilled nursing needs (i.e. seizure monitoring, feeding tube, constipation, etc) Drafting meaningful and appropriate goals for your child Inclusion with typically developing peers Training requests for relevant staff to meet the needs of educating your child or meeting their medical/therapy needs Other (please specify all additional concerns) OK Question Title * 6. FAST is excited about offering support to our families during this transition period. If FAST were not offering this service, how else might you have met this need? I/We would have contacted a local advocate / school attorney and paid privately. I/We would have reached out to other local parents for support. I/We are confident in our ability to navigate the IEP process by ourselves. I/We do not have the resources above to assist us and would be uncomfortable in the IEP process without this assistance from FAST. Other (please specify) OK Question Title * 7. Do you have any other comments, questions, or concerns that you feel would be helpful to share with FAST and/or the IEP Liaison that will help with your child's school transition?Specifically list what you hope to accomplish with the assistance of an IEP Liaison. OK Question Title * 8. By submitting this intake form and requesting the assistance of a FAST IEP Liaison, you understand and agree to the following (you must agree to all of the following [on website would require an initial or check for each]): Liaison will provide advice based on IDEA’s requirements for IEPs, not on individual state/county/school district requirements. Liaison will not be able to travel or represent client during the IEP meeting. Your child has Angelman syndrome. Your child with Angelman syndrome is entering the school system for the first time. It is expressly understood that any IEP Liaison working with FAST is not a practicing attorney and does not provide legal advice or legal services. FAST and anyone working with FAST or representing FAST cannot and does not guarantee any specific outcome. The family agrees to hold FAST and the IEP Liaison harmless. Agree to complete a short survey at the conclusion of participation in the IEP Liaison project. This contract serves as a waiver of confidentiality regarding your child’s IEP and educational needs. This waiver permits the FAST IEP Liaison to review with you your child’s educational records, reports, and evaluations. You are agreeing to be contacted. The information and links provided are for general informational purposes only. Any IEP Advocate working with FAST is not a practicing attorney and does not provide legal advice or legal services. FAST and anyone working with FAST or representing FAST cannot and does not guarantee any specific outcome. All information and links are provided in good faith; however, by providing links and information to other sites, FAST does not guarantee, approve or endorse the information or products available on those sites. OK DONE - THANK YOU FOR YOUR INPUT!