The OI Pain Project is an international collaboration of patients, advocacy groups, researchers, and providers working together to better understand the impact of pain on individuals living with osteogenesis imperfecta. This survey is designed to gather information from community members on the impact of pain in their lives. The survey is open to adults or young adults with OI who are 18 years and older or their parents, guardians, and caregivers.

Anonymized results of the survey will be reported through OIFE and OIF websites and newsletters. For questions about this survey, or project, please contact bonelink@oif.org.

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* 1. Who is completing this questionnaire?

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* 2. What is the age of the person with OI? (years)

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* 3. What is your gender?

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* 4. In our society, people are often described by their race or racial background. These are not based in science, but our race may influence the way we are treated by individuals and institutions, and this may affect our health and health outcomes. Which category(ies) best describes you? Check all that apply:

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* 5. In what country do you live?

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