CCCC Decision Aids Survey 2026

TWO-QUESTION survey! Help us decide which Decision Aids are most needed!

The Coalition for Compassionate Care of California has received funding from the ELEA Institute to develop five new patient-centered decision aids – brief, plain-language descriptions of medical treatments or procedures that may be offered in the context of serious illness or health crisis. Each decision aid describes the procedure/treatment, who it’s for, what outcomes might be expected, the risks entailed, and its impact on quality of life.

Currently, our suite of decision aids address CPR, Ventilation, Tube Feeding, and Artificial Hydration, and they are available for adults in English, Spanish, Chinese, Punjabi, Russian, Tagalog, and Vietnamese, and for pediatric patients in English. Since 2018, these decision aids have been utilized by more than 135 healthcare organizations and distributed to more than 365,000 patients.

CCCC will develop additional decision aids and to expand the offerings to other languages. We need your input to prioritize which treatments are most in need of this kind of patient-centered decision aid. Our intent is to identify treatments/procedures that may offer the possibility of real benefit but may also impose significant burdens or risks.

Please complete our TWO-QUESTION survey to assist us in this project. We would appreciate your response by February 13, 2026. Thank you!

About Elea Institute
Elea Institute is a nonprofit organization dedicated to advancing efforts to expand access to high-quality hospice and palliative care. Through its grant funding, Elea invests in critical research, the development of clinical and operational resources, and educational opportunities. Elea’s contributions focus on creating positive impacts for patients, caregivers, providers, and the broader healthcare system. www.eleainstitute.org

Question Title

* 1. The following is a list of treatments/procedures that may be offered to patients with serious illness and which may require careful consideration as to risks, benefits, impacts on quality of life, and expected outcomes. Please rate these items according to how valuable it would be to you and to your patients to have a decision aid available to explain the treatment and its pros/cons. For context, the “patient” assumed here is one with a serious, chronic, progressive, or likely terminal disease or multiple morbidities, and/or is frail, and/or of advanced age.

	Low value	Moderate value	High value
AICD (automatic implantable cardioverter defibrillator)	AICD (automatic implantable cardioverter defibrillator) Low value	AICD (automatic implantable cardioverter defibrillator) Moderate value	AICD (automatic implantable cardioverter defibrillator) High value
Allogenic stem cell transplant	Allogenic stem cell transplant Low value	Allogenic stem cell transplant Moderate value	Allogenic stem cell transplant High value
Antibiotics for life-threatening infections	Antibiotics for life-threatening infections Low value	Antibiotics for life-threatening infections Moderate value	Antibiotics for life-threatening infections High value
Antipsychotics	Antipsychotics Low value	Antipsychotics Moderate value	Antipsychotics High value
Autologous stem cell transplant	Autologous stem cell transplant Low value	Autologous stem cell transplant Moderate value	Autologous stem cell transplant High value
Blood transfusions	Blood transfusions Low value	Blood transfusions Moderate value	Blood transfusions High value
Chemotherapy	Chemotherapy Low value	Chemotherapy Moderate value	Chemotherapy High value
Deep continuous sedation for severe, intractable symptoms	Deep continuous sedation for severe, intractable symptoms Low value	Deep continuous sedation for severe, intractable symptoms Moderate value	Deep continuous sedation for severe, intractable symptoms High value
ECMO (extracorporeal membrane oxygenation)	ECMO (extracorporeal membrane oxygenation) Low value	ECMO (extracorporeal membrane oxygenation) Moderate value	ECMO (extracorporeal membrane oxygenation) High value
Hemodialysis	Hemodialysis Low value	Hemodialysis Moderate value	Hemodialysis High value
Hip fracture repair in frail patient	Hip fracture repair in frail patient Low value	Hip fracture repair in frail patient Moderate value	Hip fracture repair in frail patient High value
Hospice	Hospice Low value	Hospice Moderate value	Hospice High value
Immunotherapy	Immunotherapy Low value	Immunotherapy Moderate value	Immunotherapy High value
LVAD (left ventricular assist device)	LVAD (left ventricular assist device) Low value	LVAD (left ventricular assist device) Moderate value	LVAD (left ventricular assist device) High value
Organ transplant	Organ transplant Low value	Organ transplant Moderate value	Organ transplant High value
Pacemaker	Pacemaker Low value	Pacemaker Moderate value	Pacemaker High value
Palliative Care	Palliative Care Low value	Palliative Care Moderate value	Palliative Care High value
Peritoneal dialysis	Peritoneal dialysis Low value	Peritoneal dialysis Moderate value	Peritoneal dialysis High value

Are there other treatments for which a patient-centered decision aid would be of high value to you? (please specify)

Question Title

* 2. The following list of languages other than English and Spanish into which the decision aids might be translated. Please use the up or down arrows on the right to rank-order the options to identify the top six languages you might need in your service area. The language that ends up at the TOP of list should be the MOST frequently encountered; the one at the BOTTOM, the least frequently.

Thank you!