Welcome to a survey by HBA Support
Welcome! We invite you to share your expertise in helping shape a vital new resource for patients with hereditary brain aneurysms.
HBA Support, the UK's first patient-centred charity supporting people affected by hereditary brain aneurysms, is developing a comprehensive guide for patients and families. This project aims to provide reliable, accessible guidance for those newly diagnosed or investigating their family history.
Why your input matters:
- Your clinical experience is crucial in ensuring the guide provides accurate, practical information based on NHS practice.
- You see firsthand the challenges patients face in understanding and managing their condition.
- Your perspective on what patients need most will help us prioritise content.
This survey takes approximately 5-7 minutes to complete and there are 10 questions.