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TNA UK NATIONAL PATIENT EXPERIENCE SURVEY
Trigeminal Neuralgia and Facial Pain

Thank you for taking part in this survey. By sharing your experience, you are helping us improve understanding of trigeminal neuralgia and facial pain, strengthen research, support future funding, and improve care and support for patients and families. I am very grateful for your time, honesty and support.
Aneeta Prem
CEO, TNA UK
Intro
Help us improve understanding, diagnosis and support for trigeminal neuralgia and facial pain.
This survey takes around 8 to 12 minutes to complete. All survey responses are anonymous. If you choose to take part in a follow-up study, your email address will be collected separately at the end. Your experience matters and will help shape what happens next.
SECTION 1: CONSENT AND ROLE
1.You are completing this survey as:
2.Do you consent to your anonymised responses being used for research, policy and awareness purposes?
SECTION 2: ABOUT YOU
3.What is your age group?
4.What is your sex?
5.Where do you live?
SECTION 3: DIAGNOSIS
6.Have you been given a diagnosis for your facial pain by a healthcare professional?
7.Who gave you this diagnosis?
8.How long did it take to receive a diagnosis?
9.Who did you first seek help from?
10.Q9. Were you initially told your pain was dental?
11.If relevant, please briefly describe your experience.
12.Q10b. Did any dental treatment make your pain worse?
13.How many healthcare professionals did you see before receiving a diagnosis?
SECTION 4: PAIN PROFILE
14.Based on your experience, has this been the most severe pain you have ever experienced?
15.How severe is your pain at its worst?
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16.How severe is your pain on average?
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17.How many pain attacks do you experience on a typical day?
18.How long does a typical pain attack last?
19.Do you have pain even when you are not having a sudden attack?
20.Which best describes your pain pattern?
SECTION 5: IMPACT
21.How much does your condition affect your daily life?
22.Are you currently taking medication for your trigeminal neuralgia or facial pain?
23.Have you had to stop or reduce work because of your condition?
SECTION 6: EMOTIONAL IMPACT
24.Have you ever felt emotionally distressed because of your condition?
25.Have you ever experienced suicidal thoughts related to your pain?
If this question affects you, you are not alone. Support is available. You can contact Samaritans free on 116 123, 24 hours a day. You can also speak to your GP, call NHS 111 for urgent help, or call 999 in an emergency.
26.Have you ever spoken to a healthcare professional about these thoughts?
SECTION 7: SUPPORT
27.Have you accessed support for trigeminal neuralgia or facial pain?
28.What prevents you from accessing support?
29.Do you support TNA UK aiming to make support, information and help free for everyone living with trigeminal neuralgia?
SECTION 8: YOUR EXPERIENCE
30.What has been the hardest part of living with trigeminal neuralgia or facial pain?
31.What would you like doctors and healthcare professionals to understand about this condition?
32.What would have helped you earlier in your journey?
33.What support would make the biggest difference to you now?
FINAL FOLLOW-UP QUESTION
34.Would you be willing to take part in a follow-up research study?
If yes, please provide your email address below.
35.[Open text box]
Thank you again for taking part. Your experience will help improve understanding, research, support and future funding for people living with trigeminal neuralgia and facial pain.
Current Progress,
0 of 35 answered