KAND community survey: n-Lorem interest and questions

The KAND community heard from Dr. Chung and n-Lorem on Feb 27th. We are following up that presentation with a Q & A session with n-Lorem on March 7th. Register here.

This survey will help guide that conversation and provide important feedback to n-Lorem's team on interest level, perceived barriers, questions, etc.

Thank you for providing this feedback.

Question Title

* 1. Have you received results from Chung Lab about your patient's 'handle' results?

Yes

No, still waiting to hear back from them.

We have not provided blood samples to Chung Lab.

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* 2. Would you be interested in an ASO treatment if one were available?

Very likely

Likely

Neither likely nor unlikely

Unlikely

Very unlikely

If unlikely, why?

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* 3. If you were to, or already have engaged with the n-Lorem application process, do you know who your patient's neurologist might be/is?

Dr. Chung at Boston Children's Hospital

Other (please provide any information here such as your location, if you want your local neurologist to apply with you, if you are considering looking for a new neurologist and institution for this, etc.)

KAND community survey: n-Lorem interest and questions

Question Title

* 1. Have you received results from Chung Lab about your patient's 'handle' results?

Question Title

* 2. Would you be interested in an ASO treatment if one were available?

Question Title

* 3. If you were to, or already have engaged with the n-Lorem application process, do you know who your patient's neurologist might be/is?

Question Title

* 4. What is your KAND patient's genetic mutation? (ex: P 305 L)

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* 5. What symptoms would you hope to see improve with ASO treatment?

Question Title

* 6. Please list any questions you have about 'handles', ASO treatment and delivery, the n-Lorem application process, etc.