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Voices of ME Carers in Ireland

Carers Survey by ME Advocates Ireland (MEAI) as part of National Carers Week 2026

We invite you to share your experience of caring for someone living with Myalgic Encephalomyelitis (ME).

Carers play a vital role in the lives of people with ME, often providing practical, emotional, and advocacy support. By sharing your experiences, you can help us better understand the realities of caring for someone with ME and raise awareness of carers' experiences.

This survey is anonymous. Anonymous responses may be used in awareness campaigns, on our website, or on our social media pages.


By completing the survey, you agree that your responses may be used in awareness-raising activities.


If there is anything you would like to share that is not covered by this survey, you can contact us by email at info@meadvocatesireland.com


Thank you for helping us give a voice to carers within the ME community in Ireland.


Please share
We would be grateful if you could share this survey with other carers supporting someone with ME in Ireland.


Estimated completion time: 5–10 minutes.
Survey closes July 24th 2026
1.Who do you care for?
2.How long have you been caring for someone with ME?
3.Approximately how many hours of care or support do you provide each week?
4.How would you describe the current ME severity of the person you care for?
5.Do you also have a diagnosis of ME?
6.What has been the most challenging aspect of caring for someone with ME?
7.Has your caring role affected any of the following aspects of your own life?
(Please select all that apply.)
8.What support, services, or resources for carers would you like to see improved?
(Please select all that apply)
9.Of all the supports listed above, which ONE would make the biggest difference to you?
(Please briefly explain why if you wish.)