IWMF Integrative Wellness Program Survey - June 2026

You've been invited to take part in a short, anonymous survey

It's survey time! Because IWMF is changing the structure of the fiscal year, we need your input to make budgeting decisions about the wellness program for next year - by the end of June. We hope to improve and evolve the program based on your feedback. Please answer the questions you can, and skip the questions you can't! Thank you so much for your time - we love collaborating with you!

Getting To Know You

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1. How old are you?

Under 40

40-50

51-60

61-70

71-80

81-85

Over 85

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2. Which statement best describes you? Check all that apply.

I have WM - never had treatment, actively monitoring.

I have WM - currently being treated.

I have WM - had treatment, actively monitoring.

I am a WM caregiver (friend, family, carer of someone with WM).

I am a Bing Neel patient or caregiver

I am an MGUS patient or caregiver.

I prefer not to say.

Other (please specify)

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3. If you have WM, how many years have you been living with WM?

Under 1 year

1-5 years

6-10 years

11-15 years

16-20 years

21-25 years

Over 25 years

Other

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4. Which time zone best represents you? (Sticking to daylight savings time zones for this survey)

Eastern Time (ET) - United States and Canada

Central Time (CT) - United States and Canada

Mountain Time (MT) - United States and Canada

Pacific Time (PT) - United States and Canada

Atlantic Time Zone (Canada)

Newfoundland Time Zone (Canada)

British Summer Time (U.K.)

Central European Summer Time (CEST)

Eastern European Summer Time (EEST)

Israel Standard Time (IST)

Irish Standard Time (IST)

India Standard Time (IST)

Other Time Zone

How You Use and Value IWMF Wellness Programming / Ideas for Future

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5. How do you prefer to get information about IWMF wellness programming? Please drag and drop to place in order of preference.

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6. Which statements do you feel to be true about the Monthly Wellness Newsletter? Check all that apply.

I can find all the monthly wellness offering information I'm looking for in the Monthly Wellness Newsletter

I receive interesting and helpful content in the Monthly Wellness Newsletter

I like to hear from other wellness community members in the Monthly Wellness Newsletter

I would like more notable recordings to be sent in the Monthly Wellness newsletter

The Monthly Wellness Newsletter could be easily incorporated into the general IWMF News - Waldenstrom's Weekly Newsletter

Other (please specify)

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7. Which statement describes you best?

I prefer to attend live virtual classes.

I prefer to watch recordings of classes on my own time.

I prefer a mixture of attending live classes and watching the recordings.

Other

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8. If you regularly attend live classes, please tell us which statements best describe you.

I can easily find the class Zoom links

I need more help finding the class Zoom links

Other

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9. If you stay for the Informal Group Chats after some of our classes, how valuable are they to you?

I find the group chats very valuable.

I find the group chats valuable, sometimes.

I don't value the group chats much.

I find the group chats to be a waste of my time.

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10. If you regularly watch recordings, please tell us which statements best describe you.

I can easily find the class recordings on YouTube and Vimeo

I need more help finding the recordings of classes I missed.

Other

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11. If you regularly watch class recordings, how valuable are they to you?

I find the recordings very valuable.

I find the recordings valuable, sometimes.

I don't value the recordings much.

I find the recordings to be a waste of my time.

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12. How many WM wellness classes would you realistically attend "live" during a week?

1-2

3-4

5 or more

Other

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13. How many WM wellness classes per week would you like to see on the calendar, even if you cannot attend live?

1-2

3-4

5 or more

Other

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14. Which general type of IWMF wellness offerings do you attend? Please check all that apply.

Mind-Body classes (Chair and Mat Yoga, T'ai Chi and Qi Gong)

Fitness Classes (Movement with Mark, Cardio Flow, Fitness with Sharon)

Relaxation and Meditation Classes (Yoga Nidra, Sound Bath, Just Breathe, Mindfulness Meditation)

Joy-Inspiring, Creative Classes (Dance Therapy, Expressive Arts Class, Laugh for the Health of It)

Wellness Webinars (Information and Education with an interactive/experiential component)

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15. If applicable, which Mind-Body classes do you value most? Drag and drop to place in order of value or importance to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

Qi Gong with Donna DeLuca

N/A

Gentle Mat Yoga with Ann Grace

N/A

T'ai Chi with Rami Rones

N/A

Slow Flow Yoga with Sharon Rivet

N/A

Chair Yoga (both Ann Grace and Sharon Rivet)

N/A

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16. Any suggestions for improving any of the above Mind-Body classes? Can you suggest other Mind-Body classes you'd like to see added to the schedule?

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17. If applicable, which Fitness classes do you value most? Drag and drop to place in order of importance/value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

Movement with Mark Wild

N/A

Fitness with Sharon Piotrowski (Mix of Strength and Cardio Training)

N/A

Cardio Flow (with Ann Grace, haven't offered in a while)

N/A

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18. Do you have any suggestions for improving any of our current Fitness classes? Can you suggest other Fitness classes you'd like to see added to the schedule?

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19. Our Fitness instructor, Sharon Piotrowski, will be retiring from teaching this summer, but we'll have access to her recordings. Would you like to continue to watch them as a community?

Yes

Maybe

Other (please specify)

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20. If applicable, which Relaxation and Meditation classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

Yoga Nidra

N/A

Sound Bath

N/A

Just Breathe

N/A

Mindfulness Meditation

N/A

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21. Do you have any suggestions for improving any current Relax/Meditate classes? Can you suggest other Relax/Meditate classes you'd like to see added to the schedule?

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22. If applicable, which Joy-Inspiring, Creative classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

Dance Therapy with Lynn Falk

N/A

Laugh for the Health of It with Betsy Mercer

N/A

Get Creative - Expressive Arts with Dana Kuehn

N/A

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23. Do you have any suggestions for improving any of the above Joy / Creative classes? Can you suggest other Joy/Creative classes you'd like to see added to the schedule?

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24. If applicable, which Wellness Webinars did you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being, learned something useful)

If you have not attended a webinar, select N/A.

Music Therapy for Pain and More with Anna Cephas

N/A

Being Brain Healthy: Everyday Habits for a Sharper Mind with Marilyn Abrahamson

N/A

The Lowdown on Sugar and Cancer with Kirstin Nussgruber

N/A

The What Ifs of WM: Adopting a Positive Mindset with Deborah Kelley

N/A

Vitamins, Herbs, and Other Supplements Commonly Used by Cancer Patients with Kim DeRhodes

N/A

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25. For which area would you like to see more Education / Support - in the form of classes, webinars, and newsletter content? (Check All That Apply)

Managing Stress and Anxiety

Managing Peripheral Neuropathy

Managing Fatigue

Managing Pain

Spiritual Health / Journey

Immune System Health

Mental and Emotional Well-being

Financial Health

Integrative Oncology in General

Benefits of Exercise for WM in General

Benefits of Integrative Therapies for WM in General (those already in our program - Yoga, Meditation, T'ai Chi, etc)

Massage Therapy

Acupuncture

Music Therapy

Ayurveda

Cognitive Behavioral Therapy

Patient Support During WM Clinical Trials

WM and the Skin

WM and the Eye

Healthy Aging in General

Caregiving - both for WM and with WM

Palliative Care - Does Not Mean "End of Life" Care

Support for Death and Dying

Other (please specify)

Wellness Instruction - How Are We Doing?

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26. How would you rate the overall quality of our wellness instruction (1 is poor, 5 is excellent)

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27. Please rate the quality of wellness instruction from these individuals, if you have taken their classes. (Check N/A if you have not taken any of their classes).

	1 - Poor	2 - Fair	3 - Average/Good	4 - Pretty Good	5 - Excellent	N/A
Sharon Rivet (Yoga)	Sharon Rivet (Yoga) 1 - Poor	Sharon Rivet (Yoga) 2 - Fair	Sharon Rivet (Yoga) 3 - Average/Good	Sharon Rivet (Yoga) 4 - Pretty Good	Sharon Rivet (Yoga) 5 - Excellent	Sharon Rivet (Yoga) N/A
Ann Grace (Variety)	Ann Grace (Variety) 1 - Poor	Ann Grace (Variety) 2 - Fair	Ann Grace (Variety) 3 - Average/Good	Ann Grace (Variety) 4 - Pretty Good	Ann Grace (Variety) 5 - Excellent	Ann Grace (Variety) N/A
Mark Wild (Movement/Fitness)	Mark Wild (Movement/Fitness) 1 - Poor	Mark Wild (Movement/Fitness) 2 - Fair	Mark Wild (Movement/Fitness) 3 - Average/Good	Mark Wild (Movement/Fitness) 4 - Pretty Good	Mark Wild (Movement/Fitness) 5 - Excellent	Mark Wild (Movement/Fitness) N/A
Sharon Piotrowski (Movement/Fitness)	Sharon Piotrowski (Movement/Fitness) 1 - Poor	Sharon Piotrowski (Movement/Fitness) 2 - Fair	Sharon Piotrowski (Movement/Fitness) 3 - Average/Good	Sharon Piotrowski (Movement/Fitness) 4 - Pretty Good	Sharon Piotrowski (Movement/Fitness) 5 - Excellent	Sharon Piotrowski (Movement/Fitness) N/A
Donna DeLuca (Qigong)	Donna DeLuca (Qigong) 1 - Poor	Donna DeLuca (Qigong) 2 - Fair	Donna DeLuca (Qigong) 3 - Average/Good	Donna DeLuca (Qigong) 4 - Pretty Good	Donna DeLuca (Qigong) 5 - Excellent	Donna DeLuca (Qigong) N/A
Rami Rones (T'ai Chi)	Rami Rones (T'ai Chi) 1 - Poor	Rami Rones (T'ai Chi) 2 - Fair	Rami Rones (T'ai Chi) 3 - Average/Good	Rami Rones (T'ai Chi) 4 - Pretty Good	Rami Rones (T'ai Chi) 5 - Excellent	Rami Rones (T'ai Chi) N/A
Betsy Mercer (Laughter)	Betsy Mercer (Laughter) 1 - Poor	Betsy Mercer (Laughter) 2 - Fair	Betsy Mercer (Laughter) 3 - Average/Good	Betsy Mercer (Laughter) 4 - Pretty Good	Betsy Mercer (Laughter) 5 - Excellent	Betsy Mercer (Laughter) N/A
Dana Kuehn (Expressive Arts)	Dana Kuehn (Expressive Arts) 1 - Poor	Dana Kuehn (Expressive Arts) 2 - Fair	Dana Kuehn (Expressive Arts) 3 - Average/Good	Dana Kuehn (Expressive Arts) 4 - Pretty Good	Dana Kuehn (Expressive Arts) 5 - Excellent	Dana Kuehn (Expressive Arts) N/A
Lynn Falk (Dance Therapy)	Lynn Falk (Dance Therapy) 1 - Poor	Lynn Falk (Dance Therapy) 2 - Fair	Lynn Falk (Dance Therapy) 3 - Average/Good	Lynn Falk (Dance Therapy) 4 - Pretty Good	Lynn Falk (Dance Therapy) 5 - Excellent	Lynn Falk (Dance Therapy) N/A

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28. Please share any additional comments you might have about the quality of the wellness instruction, or any suggestions for how we can improve our instruction.

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29. In general, do you feel our wellness classes are a safe space for you to show up feeling "less than" your best self?

Yes

Sometimes

Other (Please Specify)

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30. In general, how strongly do you agree or disagree with this statement:

WM Wellness Classes are accessible to people who have differing ability levels.

Strongly Agree

Agree

Neutral - Neither Agree or Disagree

Disagree

Strongly Disagree

Other (Please Specify)

Impact of IWMF Wellness Program / Final Thoughts

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31. Which of the following benefits do you derive from the wellness offerings? (Check all that apply; add your own).

Physical well-being

Mental well-being

Spiritual well-being

Education and Information

Connection with Others

Other (please specify)

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32. How has the IWMF wellness program affected your Quality of Life (QoL)?

My QoL has improved

My QoL is about the same

My QoL has decreased

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33. Will you share any specifics about its impact on your Quality of Life?

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34. How would you rate the OVERALL quality of the wellness program? (1 is poor, 5 is excellent)

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35. What do you like best about IWMF's wellness program?

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36. How can we improve the IWMF wellness program so that it is more helpful to you?

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37. Have you ever been inspired to donate to IWMF as a result of any wellness program interaction (i.e., a particular participant, webinar, instructor, or class)?

Yes

Not yet, but perhaps in the future

Feel free to share why you were inspired to donate, if so, or any other info here.

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38. Feel free to share any other thoughts, suggestions, or comments on the value of IWMF wellness program to you.

THANK YOU FOR TAKING THE TIME TO OFFER YOUR FEEDBACK.

IWMF Integrative Wellness Program Survey - June 2026

You've been invited to take part in a short, anonymous survey

Question Title

* 1. How old are you?

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* 2. Which statement best describes you? Check all that apply.

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* 3. If you have WM, how many years have you been living with WM?

Question Title

* 4. Which time zone best represents you? (Sticking to daylight savings time zones for this survey)

Question Title

* 5. How do you prefer to get information about IWMF wellness programming? Please drag and drop to place in order of preference.

Question Title

* 6. Which statements do you feel to be true about the Monthly Wellness Newsletter? Check all that apply.

Question Title

* 7. Which statement describes you best?

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* 8. If you regularly attend live classes, please tell us which statements best describe you.

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* 9. If you stay for the Informal Group Chats after some of our classes, how valuable are they to you?

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* 10. If you regularly watch recordings, please tell us which statements best describe you.

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* 11. If you regularly watch class recordings, how valuable are they to you?

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* 12. How many WM wellness classes would you realistically attend "live" during a week?

Question Title

* 13. How many WM wellness classes per week would you like to see on the calendar, even if you cannot attend live?

Question Title

* 14. Which general type of IWMF wellness offerings do you attend? Please check all that apply.

Question Title

* 15. If applicable, which Mind-Body classes do you value most? Drag and drop to place in order of value or importance to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being) If you have not attended a class, select N/A.

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* 16. Any suggestions for improving any of the above Mind-Body classes? Can you suggest other Mind-Body classes you'd like to see added to the schedule?

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* 17. If applicable, which Fitness classes do you value most? Drag and drop to place in order of importance/value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being) If you have not attended a class, select N/A.

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* 18. Do you have any suggestions for improving any of our current Fitness classes? Can you suggest other Fitness classes you'd like to see added to the schedule?

Question Title

* 19. Our Fitness instructor, Sharon Piotrowski, will be retiring from teaching this summer, but we'll have access to her recordings. Would you like to continue to watch them as a community?

Question Title

* 20. If applicable, which Relaxation and Meditation classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being) If you have not attended a class, select N/A.

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* 21. Do you have any suggestions for improving any current Relax/Meditate classes? Can you suggest other Relax/Meditate classes you'd like to see added to the schedule?

Question Title

* 22. If applicable, which Joy-Inspiring, Creative classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being) If you have not attended a class, select N/A.

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* 23. Do you have any suggestions for improving any of the above Joy / Creative classes? Can you suggest other Joy/Creative classes you'd like to see added to the schedule?

Question Title

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* 25. For which area would you like to see more Education / Support - in the form of classes, webinars, and newsletter content? (Check All That Apply)

Question Title

* 26. How would you rate the overall quality of our wellness instruction (1 is poor, 5 is excellent)

Question Title

* 27. Please rate the quality of wellness instruction from these individuals, if you have taken their classes. (Check N/A if you have not taken any of their classes).

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* 28. Please share any additional comments you might have about the quality of the wellness instruction, or any suggestions for how we can improve our instruction.

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* 29. In general, do you feel our wellness classes are a safe space for you to show up feeling "less than" your best self?

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* 30. In general, how strongly do you agree or disagree with this statement: WM Wellness Classes are accessible to people who have differing ability levels.

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* 31. Which of the following benefits do you derive from the wellness offerings? (Check all that apply; add your own).

Question Title

* 32. How has the IWMF wellness program affected your Quality of Life (QoL)?

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* 33. Will you share any specifics about its impact on your Quality of Life?

Question Title

* 34. How would you rate the OVERALL quality of the wellness program? (1 is poor, 5 is excellent)

Question Title

* 35. What do you like best about IWMF's wellness program?

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* 36. How can we improve the IWMF wellness program so that it is more helpful to you?

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* 37. Have you ever been inspired to donate to IWMF as a result of any wellness program interaction (i.e., a particular participant, webinar, instructor, or class)?

Question Title

* 38. Feel free to share any other thoughts, suggestions, or comments on the value of IWMF wellness program to you.

1. How old are you?

2. Which statement best describes you? Check all that apply.

3. If you have WM, how many years have you been living with WM?

4. Which time zone best represents you? (Sticking to daylight savings time zones for this survey)

5. How do you prefer to get information about IWMF wellness programming? Please drag and drop to place in order of preference.

6. Which statements do you feel to be true about the Monthly Wellness Newsletter? Check all that apply.

7. Which statement describes you best?

8. If you regularly attend live classes, please tell us which statements best describe you.

9. If you stay for the Informal Group Chats after some of our classes, how valuable are they to you?

10. If you regularly watch recordings, please tell us which statements best describe you.

11. If you regularly watch class recordings, how valuable are they to you?

12. How many WM wellness classes would you realistically attend "live" during a week?

13. How many WM wellness classes per week would you like to see on the calendar, even if you cannot attend live?

14. Which general type of IWMF wellness offerings do you attend? Please check all that apply.

15. If applicable, which Mind-Body classes do you value most? Drag and drop to place in order of value or importance to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

16. Any suggestions for improving any of the above Mind-Body classes? Can you suggest other Mind-Body classes you'd like to see added to the schedule?

17. If applicable, which Fitness classes do you value most? Drag and drop to place in order of importance/value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

18. Do you have any suggestions for improving any of our current Fitness classes? Can you suggest other Fitness classes you'd like to see added to the schedule?

19. Our Fitness instructor, Sharon Piotrowski, will be retiring from teaching this summer, but we'll have access to her recordings. Would you like to continue to watch them as a community?

20. If applicable, which Relaxation and Meditation classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

21. Do you have any suggestions for improving any current Relax/Meditate classes? Can you suggest other Relax/Meditate classes you'd like to see added to the schedule?

22. If applicable, which Joy-Inspiring, Creative classes do you value most? Drag and drop to place in order of importance or value to you, with most valuable at the top, and least valuable at the bottom. (Value = helpful, improves state of being)

If you have not attended a class, select N/A.

23. Do you have any suggestions for improving any of the above Joy / Creative classes? Can you suggest other Joy/Creative classes you'd like to see added to the schedule?

25. For which area would you like to see more Education / Support - in the form of classes, webinars, and newsletter content? (Check All That Apply)

26. How would you rate the overall quality of our wellness instruction (1 is poor, 5 is excellent)

27. Please rate the quality of wellness instruction from these individuals, if you have taken their classes. (Check N/A if you have not taken any of their classes).

28. Please share any additional comments you might have about the quality of the wellness instruction, or any suggestions for how we can improve our instruction.

29. In general, do you feel our wellness classes are a safe space for you to show up feeling "less than" your best self?

30. In general, how strongly do you agree or disagree with this statement:

WM Wellness Classes are accessible to people who have differing ability levels.

31. Which of the following benefits do you derive from the wellness offerings? (Check all that apply; add your own).

32. How has the IWMF wellness program affected your Quality of Life (QoL)?

33. Will you share any specifics about its impact on your Quality of Life?

34. How would you rate the OVERALL quality of the wellness program? (1 is poor, 5 is excellent)

35. What do you like best about IWMF's wellness program?

36. How can we improve the IWMF wellness program so that it is more helpful to you?

37. Have you ever been inspired to donate to IWMF as a result of any wellness program interaction (i.e., a particular participant, webinar, instructor, or class)?

38. Feel free to share any other thoughts, suggestions, or comments on the value of IWMF wellness program to you.