Aloha, and Mahalo for participating!

This survey is designed to gather important information from you, your family and caregivers, and the community on whether/how well we are responding to the needs of persons with Intellectual and developmental disabilities (I/DD) in Hawaii.  

Since the COVID epidemic began in 2020, much has changed for all of us, and we want to hear from you about how you are doing at this time, in 2022. 

This survey consists of 52 questions, we expect it to take approximately 20 minutes to complete online. Our survey is intended to capture information about persons with I/DD. If you are assisting a person(s) with I/DD to complete this survey please answer the questions based on their perspective and needs, rather than your own. Please complete only one survey per person with I/DD-Mahalo!

Your privacy is important to us, all survey responses are strictly confidential, and all information gathered with be compiled for a final report and recommendations for systemic improvements and change. 

This survey is voluntary: you may stop at any time or skip questions you prefer not to answer. We are unable to save your survey responses on SurveyMonkey, please plan to complete it entirely and submit it in one session. 

If you need assistance answering any or all of the questions or if you have questions please email, HSCDDsurvey@gmail.com

This survey will be available online until August 15, 2022. After August 15, 2022 the survey will be closed so that we can analyze all the responses and complete a summary for HSCDD to share.
Background Questions 

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* 1. I am: 

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* 2. My age range is: 

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* 3. My ethnicity is:

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* 4. I identify as: 

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* 5. I have been diagnosed with:

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* 6. I live on:

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* 7. My zip code is:

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* 8. What is your current living situation?

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* 9. I am an active member of:

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* 10. I receive support services for my disability from:

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* 11. I currently have the following health insurance:

Health Questions 

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* 12. What is your top health care need right now?

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* 13. Which of these affect your health and well-being? 

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* 14. Do you have a regular medical provider (medical home) that you go to for any medical or health care need? 

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* 15. Do you have a regular dental provider that you go to for any dental care need? 

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* 16. When you get sick or have a health problem, where do you go?

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* 17. Do you have mental health or emotional health needs that you are not receiving care for at this time?

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* 18. On average, how long is the wait for you to receive health care services that you need?

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* 19. When was the last time you saw a doctor or healthcare provider to get a checkup (wellness check-up, not because you were sick)?

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* 20. In the last year, was there a time when you needed medical care but were not able to get it? 

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* 21. What are the biggest troubles/problems in receiving timely health care services?

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* 22. Overall, I think my physical health is:

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* 23. Overall, I think my mental/emotional health is: 

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* 24. Where do you get most of your health and medical information?

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* 25. Have you had any of the following in the past year?

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* 26. Have you received any of the following in the past year?

Note: Natural disasters include all types of severe weather, which have the potential to pose a significant threat to human health and safety, property, critical infrastructure, and homeland security, including: winter storms, floods, tornados, hurricanes, wildfires and earthquakes.

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* 27. Are you aware of agencies that help you meet your health care needs?

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* 28. Do you need help with information about healthy sexual relationships?

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* 29. Any comments on health you'd like to share

Education Questions 

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* 30. Are you currently a student?

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* 31. What is the highest educational level you have completed so far?

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* 32. Have you received any educational services/supports in your transition/move from high school to adulthood (school, work, other)?

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* 33. What is your top educational need that you would like to see addressed for persons with an I/DD? 

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* 34. What are the biggest troubles/problems to you receiving further education?

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* 35. Are you currently receiving the educational support services that you need? 

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* 36. Which educational support services are you currently receiving?

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* 37. Which educational support services do you need, but are currently not receiving? 

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* 38. Any comments on education you like to share

Work Questions 

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* 39. What is your current job status?

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* 40. Have you received any work-related services/supports in your transition/move from high school to adulthood (school, work, other)?

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* 41. Do you currently feel supported and assisted in your efforts to work as a person with I/DD?

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* 42. What specific work-related services would you like to see offered

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* 43. If you are currently working, think about your current job, how satisfied are you with what you are doing?

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* 44. What are your biggest troubles/problems to being employed?

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* 45. Did you lose or have to leave your job because of the coronavirus pandemic?

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* 46. What was your total income last year, before taxes?

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* 47. Do you currently have an ABLE for ALL savings account? 

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* 48. If you are working now, what type of work are you doing?

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* 49. If you are working now, on average how many hours do you work in a week?

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* 50. If you are currently working, how long does it take you to get to work? 

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* 51. Any comments on work you'd like to share

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* 52. Any comment on anything you'd like to share that was not mentioned in this survey

Mahalo for completing this HSCDD survey!
 
This information will be compiled and a report with recommendations for actions and improvements will be completed by the Fall of 2022. When the data analysis is completed, all personal information and individual responses will be destroyed.
 
If you would like to receive a copy of the report, click here.

If there are questions please email, HSCDDsurvey@gmail.com

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