Welcome to this mental health survey of the European Haemophilia Consortium (EHC), an international non-profit organisation representing 49 national patient organisations for people with rare bleeding disorders.
Imagine a world where your challenges with a bleeding disorder or as a caregiver are truly understood and where tailored psychological support is available at every Haemophilia Centre in Europe.
By completing our survey, you’ll:
- Share your story
- Drive real change
- Build solidarity
This isn’t just another questionnaire, it’s a chance to make sure no one faces isolation, anxiety, or stigma alone.
Ready to help shape better care in your country and beyond?
If so, we would be extremely grateful if you could fill in this survey before 9 November 2025.
Imagine a world where your challenges with a bleeding disorder or as a caregiver are truly understood and where tailored psychological support is available at every Haemophilia Centre in Europe.
By completing our survey, you’ll:
- Share your story
- Drive real change
- Build solidarity
This isn’t just another questionnaire, it’s a chance to make sure no one faces isolation, anxiety, or stigma alone.
Ready to help shape better care in your country and beyond?
If so, we would be extremely grateful if you could fill in this survey before 9 November 2025.
Note that this survey is intended for:
- People living with a bleeding disorder, and
- Caregivers or family members caring for someone with a bleeding disorder.
If you do not fall into one of these groups, we kindly ask that you do not complete the survey.
- Caregivers or family members caring for someone with a bleeding disorder.
If you do not fall into one of these groups, we kindly ask that you do not complete the survey.
Disclaimer:
Participation in this survey is anonymous and voluntary, and you can withdraw at any time before submitting your responses. The information you provide in this survey will be used solely for research purposes. All data will be stored securely and processed in compliance with the General Data Protection Regulation (GDPR). If you have questions about your data or wish to exercise your rights (e.g., access, rectification, deletion), please contact us. By proceeding with this survey, you acknowledge and agree to these terms.
Thank you for your valuable time and contribution!
The EHC Team