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Share Your Voice: Patient Survey for the Voice of the Patient on Diabetic Retinal Disease (EL-PFDD)
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The Voice of the Patient Meeting, formally known as the Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting, was held on February 12, 2026. This Meeting empowered individuals living with vision loss from diabetes or fear of it, as well as their families and caregivers, to share real-life experiences directly with the FDA and other important stakeholders, including product developers, clinicians, and researchers. Here is your opportunity to add your voice. Your input is essential in showing the urgent need for better treatments and support for people with Diabetic Retinal Disease (DRD).
What is Diabetic Retinal Disease (DRD)?
DRD is a broad term for the different kinds of damage diabetes can cause to the back of the eye, called the retina. This can include:
- Harm to the blood vessels in the retina (diabetic retinopathy or DR),
- Swelling in the retina (diabetic macular edema or DME),
- And damage to the retina’s nerve cells that help us see (diabetic retinal neurodegeneration or DRN).
In short, DRD refers to all the ways diabetes can harm your retina and affect your vision.
Add Your Voice to the Conversation!
During the Voice of the Patient Meeting, patients participated in live polling to share their perspectives. We invite you to join them by completing this survey—your responses will help shape the future of DRD treatment and care. Don’t miss this opportunity to make your voice count.
To learn more and watch the meeting, visit:
https://www.marytylermoore.org/el-pfdd/
*
1.
Are you:
(Required.)
Someone with Type 1 Diabetes at risk of or living with vision loss from Type 1 Diabetes
Someone with Type 2 Diabetes at risk of or living with vision loss from Type 2 Diabetes
A family member or close friend of someone with diabetes at risk for or living with vision loss from Type 1 Diabetes
A family member or close friend of someone with diabetes at risk for or living with vision loss from Type 2 Diabetes
*
2.
Where do you currently reside?
(Required.)
US Pacific time
US Mountain time
US Central time
US Eastern time
US Alaska time
US Hawaii time
Europe and UK
Middle East
Asia
Canada
Mexico, Central America, South America or Caribbean
Other
*
3.
What is your gender or the gender of your loved one with diabetes at risk of or living with vision loss from DRD?
(Required.)
Female
Male
Non-binary
Prefer not to say
*
4.
What is your or your loved one’s annual family/household’s income before taxes?
(Required.)
Less than $25,000
$25,000 to $49,999
$50,000 to $74,999
$75,000 to $99,999
$100,000 to $149,999
$150,000 to $199,999
$200,000 or more
Prefer not to say
*
5.
How old are you or your loved one at risk of or living with vision loss from diabetes (or age they passed away)?
(Required.)
18-24 years of age
25-34 years of age
35-44 years of age
45-54 years of age
55-64 years of age
65-74 years of age
75 years of age or older
*
6.
At what age were you or your loved one diagnosed with vision loss from diabetes?
(Required.)
<18 years of age
18-30 years of age
31-50 years of age
51+ years of age or older
Not sure / don’t remember
Do not yet suffer from vision loss from diabetes
