Welcome!You are invited to complete a brief 10 minute (potentially up to 20 minutes) survey on your experiences with breast cancer screening (testing). The survey will ask about demographics, provider attitudes, and your overall experience talking about breast cancer screening. This survey is for women with disabilities and health conditions ages 18-74.
Study Purpose: This survey is to help us create training information for medical providers to improve breast cancer screening care for women with disabilities.
Definition of Disability: Any physical, sensory, cognitive, or mental health condition that substantially limits one or more major life activities (consistent with the ADA). This includes but is not limited to mobility impairments, visual or hearing impairments, intellectual disabilities, autism, and mental health conditions.
Disabilities and health conditions can include:
- Intellectual or cognitive disability (a disability that impacts how you learn and understand)
- Developmental disability (a disability you were born with or that occurred before the age of 22)
- Hearing disability
- Visual disability
- Physical or mobility disability (disability that affects the way you walk or use your body)
- Psychiatric or mental health disability
- Acquired disability (spinal cord injury, brain injury, amputations)
- Chronic health condition (examples: diabetes, immune disorder, organ dysfunction, asthma, arthritis, etc.)
Completing this survey:
- You can choose if you want to take the survey.
- You can skip most questions. You do have to answer a few questions to help us decide if you are a part of the group we are trying to study. If you don’t want to answer those questions, you can quit the survey at any time.
- You can ask someone to help you fill out this survey, but make sure the answers are yours.
- None of your answers will be connected back to you personally. We will not ask for your name or any information that would tell us who you are.
- Your answers are anonymous, meaning that we will not know who you are.We will only share your answers together with everyone else’s. No one will know which answers are yours.
Risk of study participation: There are some risks of sharing information about yourself. The survey will not ask your name or any contact information to keep any risks low. We will keep all the information you share with us safe and protect your privacy.
Research Team: This study is conducted by the
Center on Disability,
CAMI Health's The Full Scoop, and the
Public Health Institute.
This is a research study. There are no costs to you beyond your time. There is no compensation for participation. The information you share will inform the development of tools for clinicians to use for their patients with disabilities. Survey data will be collected and stored on a secure, password-protected platform.
IRB Review:This study has been reviewed and determined as exempt research by the Public Health Institute (PHI) IRB.
Questions? Contact Jerri Davison (
jerrid@adapacific.org). You can also call Robert McLaughlin, J.D., Ph.D., Administrator of the PHI Institutional Review Board (the committee that oversees PHI research involving human subjects) during regular business hours at (510) 285-5500.