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Escape, as an empowerment based LGBTQI2S+ Adolescent and Young Adult Cancer organization, is working to provide a literal escape from all that comes with going through cancer as a sexual and/or gender minority. You deserve a safe haven where you can be in community with peers who share your experience on a deeper level. 

Elephants & Tea and Escape are working in collaboration to address the needs of the LGBTQI2S+ cancer community. Our collaboration is founded by our shared values of creating space in cancer care that is safe for self expression and building community through centering the patient voice. The questions below were created by LGBTQI2S+ cancer community members within Escape and allies at Elephants & Tea for us to better understand your needs and where additional support is needed to meet your needs. 

Your responses will be specifically supporting Escape in the expansion of our offerings. The Needs Assessment will inform the education we offer partnered organizations and medical institutions so they can provide more inclusive healthcare. We want to see where we are as both an organization and in healthcare, and identify where we need to go to cover important gaps.

These questions may not speak to everyone’s experience as a cancer patient or caregiver. And if there are questions you would have liked to see in this assessment, we would love your feedback and hear how we can better support you. Please share in question 22 or email us at escape.yac@gmail.com. This is an anonymous needs assessment and all responses will remain confidential between Elephants & Tea and Escape and will not be shared or sold to any outside parties. 

You must be over the age of 18 and living in the United States to participate. 

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* 1. How old are you? (Select One)

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* 2. What is your gender identity (Select all that apply)

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* 3. What is your sexual orientation?

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* 4. Which of the following best describes you? (Select One)

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* 5. I am a... (Check all that apply)

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* 6. If you are comfortable sharing, what type(s) of cancer have you been diagnosed with?

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* 7. Treatment Status (Check all that apply)

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* 8. How have you interacted with Escape? (Check all that apply)

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* 9. If you have interacted with Escape, how has Escape impacted your life? (Share in 2 sentences)

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* 10. Everyone’s support system is different and many LGBTQI2S+ folks don’t have community support and have to redefine community/familial support in their life. What does community look like for you? How can Escape foster community?

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* 11. If you have community support, how can they show up for you? How can your community support you best?

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* 12. Is there another Community Based, Cancer and/or LGBTQI2S+ organization that has given you LGBTQI2S+ specific cancer support? What is the name of the organization(s)? In what ways did you receive support? (If not applicable, respond N/A)

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* 13. What does self-care look like for you as an LGBTQI2S+ identifying individual?

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* 14. What has been your escape during your cancer experience?

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* 15. What would you like other LGBTQI2S+ community members to know beforehand when seeking cancer care? What do you wish was shared with you? Is there anything you wish your medical team had gone over with you which they didn’t?

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* 16. Your experience is important. Is there any specific memory or experience you are comfortable sharing that you think would be helpful for this assessment? (Any experience whether that is with medical or communal/familial.)

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* 17. What would you like to know more about as someone in the LGBTQI2S+ community? (Check all that apply)

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* 18. How is the cancer community and experience represented now in media and cancer non-profits? Does this reflect your experience? How do you feel that representation impacts you?

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* 19. Have you noticed a difference in the care you receive from different medical providers? (E.g. Primary Care Provider vs. Hematology/Oncology Provider) If yes, what are those differences?

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* 20. What is one or two pieces of feedback that would improve your experience with medical providers as a LGBTQI2S+ patient or caregiver?

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* 21. How can we create space for culturally-based approaches to healing? (E.g. culturally significant self and community care that you may be practicing alongside your treatment plan for cancer) How can we as an organization advocate for the inclusion and respect of culturally based approaches to healing in medical spaces?

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* 22. Is there anything that we have forgotten to ask that you feel is important for Escape to know about your experience in living with cancer as someone who identifies as LGBTQI2S+?

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