Skip to content

Navigating a New Myositis Diagnosis

Community Tips

TMA recognizes the impact that a myositis diagnosis has on the emotional wellbeing of patients, families, and care partners. Help those newly diagnosed with myositis navigate these challenges by completing this form and submitting your insights from navigating your own myositis journey.

Share what you and your family do to overcome isolation, connect with others, seek support, and manage stress. Questions? Email tma@myositis.org.

Thank you for sharing!
1.What were your main concerns or fears when you first received your diagnosis?
2.How have your initial concerns or fears changed in the time since being diagnosed?
3.What information, resources, or support helped you most in the early stages after your diagnosis?
4.What advice would you like to share about communicating with your physicians and other healthcare professionals?
5.What advice do you have for myositis care partners?
6.What tools, strategies, or resources have helped you manage the physical symptoms of myositis?
7.What has helped you take care of your mental or emotional health while living with myositis?
8.What resources, apps, sites, and/or organizations do you rely upon for credible information and helpful tools?
9.What is one thing you wish you had known when you were first diagnosed with myositis?