The National Survey on Lupus is for people living with lupus in Canada and has been co-developed by Arthritis Consumer Experts (ACE) and Lupus Canada. The Survey results will help ACE and Lupus Canada identify where lupus treatments and health care are meeting the needs of people living with lupus and where critical gaps exist. Based on your lived experiences reported in the Survey, we will create needed resources and better advocate for the health and well-being of people with lupus.
Participation in the Survey is anonymous.
What am I being asked to share?
The Survey asks questions about your lupus diagnosis, treatment, and care.
The Survey also asks questions regarding economic and social conditions as research has shown that gender, ethnicity, education, income, and geographic location may influence access to health care services and in many cases, health outcomes.
How will the information provided be used?
The National Survey will collect important input from people living with lupus. We will look for patterns and trends in the information so we can better understand the challenges that people with lupus are facing.
Your participation is deeply appreciated and contributes to ensuring the voices of people with lupus are heard in our advocacy work. Arthritis Consumer Experts and Lupus Canada intend to share the Survey results with researchers, physicians, public and private drug plan policy decision-makers and media to advance the understanding of the lived experience of people with lupus.
How will my privacy be protected?
Arthritis Consumer Experts stores Survey responses in a secure database and in accordance with Canadian research ethics guidelines. All responses are pooled for analysis and your participation remains anonymous.
Consent
Participation in this Survey is voluntary. You can stop the Survey at any time. If you start the Survey and decide you do not want to participate before completing the Survey, your responses will not be included in our pooled analysis. Please do not include any information that could identify you or others when providing written comments (for example, any names and addresses or locations).
Completing this Survey will take approximately 13 minutes of your time. Thank you for participating.
Please note all questions in this Survey require an answer.
