1.Introduction
Hosted by the South Thames Paediatric Network, in collaboration with Evelina London. Funded by Evelina London Charity, on behalf of the Tony Hudgell Fund
Developing multidisciplinary standards of care across South London and the South East of England, for children and young people who require management of their tone, caused by spasticity and dystonia.
Project team: Sammy Randall, Dr Dan Lumsden, Sally Watts, Miranda Loveday and Mary Aklog
Survey Introduction
Dear participant
Thank you for joining round 1 of this Delphi survey, to develop consensus based, regional standards of care for children and young people with hypertonia.
By taking part in the survey, you can help shape services that are better designed to meet the needs of children with neurological movement difficulties.
We are very much looking forward to hearing your views.
The survey consists of 2 online rounds. This is round 1 (7th to 20th April 2026), with round 2 following (week beginning 27th April).
For additional information about the study, including participant information, please visit:
https://stpn.uk/the-tony-hudgell-rehabilitation-programme/the-tony-hudgell-rehabilitation-programme-project-2/
This survey will take approximately 15-20 minutes.
If you choose to complete this survey:
1) Your views will be anonymous
2) The information you provide us with will be treated confidentially
3) Any data gathered from the survey may be published or used for future research, but your name (and any other identifying information) will not be disclosed
Please note, that whilst we have tried our best to keep the technical language in this survey to a minimum, sometimes there may be terms that are often used by healthcare professionals, which you may not be familiar with. You can find an explanation for each of the terms in our glossary here:
Glossary for Project
We are very much looking forward to hearing your views.
The survey consists of 2 online rounds. This is round 1 (7th to 20th April 2026), with round 2 following (week beginning 27th April).
For additional information about the study, including participant information, please visit:
https://stpn.uk/the-tony-hudgell-rehabilitation-programme/the-tony-hudgell-rehabilitation-programme-project-2/
This survey will take approximately 15-20 minutes.
If you choose to complete this survey:
1) Your views will be anonymous
2) The information you provide us with will be treated confidentially
3) Any data gathered from the survey may be published or used for future research, but your name (and any other identifying information) will not be disclosed
Please note, that whilst we have tried our best to keep the technical language in this survey to a minimum, sometimes there may be terms that are often used by healthcare professionals, which you may not be familiar with. You can find an explanation for each of the terms in our glossary here:
Glossary for Project