Purpose
To understand gaps in care, support, research and innovation for people affected by neurological and neuromuscular conditions in Australia, informed by lived experience and perspectives of carers, clinicians, researchers, service providers, pharmaceutical industry and policymakers.

Your responses will directly inform the advocacy and policy work of the Neurological Alliance Australia (NAA). The survey is intended to be conducted every two years to support benchmarking over time and to track changes in outcomes and system performance for people living with neurological and neuromuscular conditions across Australia.

Definition used in this survey
We use the term ‘neurological conditions’ to be inclusive of all relevant conditions. Throughout this Survey, the term ‘neurological conditions’ is used as a shorthand to encompass a broad and diverse population of individuals living with conditions that primarily affect the brain, spinal cord, peripheral nerves and/or muscles.

This includes:
  • neurological conditions that predominantly affect the central or peripheral nervous system.
  • neuromuscular conditions where the primary impact lies in the connection between nerve and muscle function, often with overlapping neurological features.
  • some rare or complex multi-system conditions that may not fit neatly into traditional categories, but which have a predominantly neurological impact on people’s lives.

Answering the Survey
Please answer all relevant questions in Section A, along with one additional section relevant to your role (you will be directed to this section automatically based on your response to Question A1).

If you have more than one role (for example you might be a service provider and a carer, or from a patient organisation and a researcher), you may complete the survey a second time, responding from the perspective of your additional role.

You may ask another person to assist you in completing the survey.

Time: This survey typically takes around 10 minutes to complete. If you need to take a break, you may return later to continue or edit your responses at any time before clicking the “Done” button at the end.

Privacy: This is an anonymous survey. Responses will be collected and reported only in deidentified or aggregated form. MS Australia, as host organisation of the Neurological Alliance Australia, is responsible for handling survey data in accordance with its Privacy Policy to ensure the privacy of all respondents.

Well-being Support: If completing this Survey raises any health or well-being concerns for you, please contact your service provider or health professional.

Questions: If you have any questions relating to the Survey, please contact NAA Executive Officer David Ali at david.ali@NeurologicalAlliance.org.au.
 
 2% of survey complete.

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