Metastatic Breast Cancer Survey - Trodelvy (sacituzumab govitecan)

Rethink Breast Cancer is looking for individuals with metastatic triple-negative breast cancer and anyone who has been treated with Trodelvy (sacituzumab govitecan) to talk about their experience.

The Canadian Agency for Drugs and Technologies in Health (CADTH) makes recommendations about whether provincial health plans should pay for new cancer drugs. CADTH will soon be reviewing the use of Trodelvy (sacituzumab govitecan) to treat unresectable locally advanced or metastatic triple-negative breast cancer who have received at least two prior therapies, including at least one prior therapy for locally advanced or metastatic disease.

Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process. We would like to speak with patients about their experience with metastatic triple-negative breast cancer.
 
You do not need to live in Canada to respond to this survey; we appreciate input from every patient.

We are also interested in speaking directly with those who have treatment experience with Trodelvy (sacituzumab govitecan).

Please contact MJ DeCoteau at survey@rethinkbreastcancer.com if you would be willing to participate in a brief telephone interview.
 
We would like to thank everyone for helping to ensure that patient experiences are represented in the cancer drug funding review process.
 
Privacy Policy: To ensure patient privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used for the final submission to government agencies without reference to patient name or any other information that could lead to identifying the patient.

Question Title

* 1. Have you been diagnosed with metastatic triple-negative breast cancer (mTNBC)?

Question Title

* 3. Were you originally diagnosed with mTNBC or did your breast cancer progress after diagnosis?

Question Title

* 5. Has your breast cancer led to any brain metastases?

Question Title

* 6. What treatment phase are you in?

Question Title

* 7. What treatments have you received since your diagnosis?

Question Title

* 8. Please describe your overall experience with these cancer treatments including both positive and negative experiences.

Question Title

* 9. What side effects have you experienced as a result of treatment?

Question Title

* 10. If you experienced treatment side effects, which did you find most difficult to tolerate?

Question Title

* 11. Have you had difficulties accessing cancer treatments?

Question Title

* 12. Do you have financial challenges as a result of your breast cancer treatment?

Question Title

* 13. Have you needed financial assistance due to costs associated with breast cancer or its treatment?

Question Title

* 14. On a scale of 1 (not important) to 5 (very important), how important are these outcomes for your breast cancer treatment?

  1 - not important 2 3 4 5 - very important
Controlling disease progression
Reducing symptoms
Maintaining quality of life
Managing side effects
Preventing recurrence
Overall survival
Questions 15-28 are for patients with Trodelvy (sacituzumab govitecan) treatment experience. If you have not received this treatment, please proceed directly to Question 29.

Question Title

* 15. Have you been treated as a breast cancer patient with Trodelvy (sacituzumab govitecan)?

Question Title

* 16. Did you receive at least two lines of treatment for breast cancer before receiving Trodelvy?

Question Title

* 17. Did you receive at least one line of treatment for metastatic breast cancer before receiving Trodelvy?

Question Title

* 18. How long were you treated with Trodelvy?

Question Title

* 19. Are you still receiving Trodelvy for treatment of breast cancer?

Question Title

* 20. On a scale of 1 (much worse) to 5 (much better), how has your life changed on Trodelvy compared to other therapies that you received?

  1 - much worse 2 3 4 5 - much better n/a
Metastatic cancer symptoms
Drug side effects
Maintaining quality of life
Controlling disease progression
Preventing recurrence
Overall survival
Ability to work
Ability to sleep
Ability to drive
Ability to perform household chores
Ability to care for children

Question Title

* 21. Did Trodelvy provide any relief from the symptoms associated with metastatic breast cancer? If so, which ones?

Question Title

* 22. What side effects have you experienced while on Trodelvy?

Question Title

* 24. Were you able to manage the side effects associated with Trodelvy? If so, how?

Question Title

* 25. Did the long infusion time for Trodelvy represent a problem for you?

Question Title

* 26. If treatment with Trodelvy is unsuccessful, are you prepared to resume chemotherapy?

Question Title

* 27. Overall, what has been your experience with Trodelvy? Describe the positive and negative.

Question Title

* 28. Based on your personal experiences with Trodelvy, would you recommend it to other patients with breast cancer?

Question Title

* 29. What country are you from?

Question Title

* 31. Would you be willing to participate in a telephone survey to discuss your experience with Trodelvy?

Question Title

* 32. If yes, please enter your email address or phone number below.

Question Title

* 33. We expect another treatment for mTNBC to be submitted in the near future. Can we contact you to participate in a second survey for this treatment?

If you have a primary caregiver who is willing to participate in this survey, please allow them to complete the following questions by themselves.

If you don't have a primary caregiver or if they do not wish to participate in this survey, click Done at the bottom of the page to complete the survey.

Question Title

* 34. What is your relationship to the breast cancer patient?

Question Title

* 35. How would you describe the severity of the challenges you have faced as a caregiver on a scale of 1 (not at all severe) to 5 (very severe)? Please elaborate in the comments section.

  1 - not at all severe 2 3 4 5 - very severe
Financial
Health
Educational
Social
Professional

Question Title

* 36. What type of support is or would be most helpful for you in order to care for someone with breast cancer?

Question Title

* 37. How would you describe the effect of Trodelvy on the patient for whom you are caring?

Question Title

* 38. How did treatment with Trodelvy affect your responsibilities as a caregiver?

T