Introduction

Thank you for agreeing to participate in this research survey on caregiving in the United States! 

This questionnaire is designed to understand the needs of people like you who voluntarily care for individuals with chronic and/or debilitating illnesses or conditions so that we can better support you in your caregiving role. More than 70 organizations are partnering on this survey because of their keen interest in helping you, the caregiver, as you navigate medical and care decisions that affect you and your loved one. (Click here to see the full list of Partners & Advisors.)

Your responses will be combined with those from other people who are caregivers and not linked to any of your personal information. Survey responses will be sent over a secure encrypted connection and IP addresses will not be tracked.  You will not be asked to buy anything, nor will you be contacted or added to any mailing lists based on your participation.

Taking part in this research is totally voluntary — that is, it's completely up to you whether you want to begin or complete the survey. It should only take about 15-20 minutes of your time, and you can decide to stop at any time; you will not be penalized for doing so. There are no direct benefits for participating, but we do hope you are willing to share your experiences so that we and our partners can better understand your needs as a caregiver. 

This survey is being conducted by Rx4good, a U.S.-based consulting company that helps healthcare organizations to deliver on their promise to put patients and caregivers first. Please click here to contact Rx4good if you have any questions, complaints or concerns about the survey.

This research is being overseen by an Independent Review Board (“IRB”). An IRB is a group of people who perform independent review of research studies. You may reach them at info@NEIRB.com if you have questions, concerns, complaints or cannot reach Rx4good.  We believe that answering survey questions involves little risk or chance for harm to you.  However, you may contact New England IRB if you have questions about your rights as a survey participant or if you think you have been hurt by the research.

Let’s get started!

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