1. Barth Syndrome Diagnosis Confirmation

Question Title

* 1. We are only able to provide care packages for individuals with a confirmed diagnosis of Barth syndrome.  If the individual for whom this request is being made is not someone that is known to our organization we will need to reach out to the person making this request for more information.
 
Does the person for whom you are making this request have a confirmed diagnosis of Barth syndrome?

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