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Researchers at Duke University, ZERO - The End of Prostate Cancer, and Pfizer Oncology seek to better understand the needs of prostate cancer patients. This includes possible gaps in patient education, goals for treatment, shared decision making, and access to care.

Your insight will help build programs, develop initiatives, and improve patient access in order to produce better outcomes for all people impacted by prostate cancer.

This survey will take you approximately 25 minutes and should only be taken by prostate cancer patients or survivors. When responding to these questions, please consider your prostate cancer journey - whether it was one encounter or years of treatment. Thank you for your participation! 


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* 2. What is your 5-digit zipcode?

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* 4. Which of the following best describes you?

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* 5. Are you a military Veteran?

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* 6. What is your current health insurance or health coverage status?

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* 8. What was your stage at diagnosis?

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* 9. What is your stage now?

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* 10. Have you had genetic testing done? (Genetic testing looks for genes that are passed down to you from your parents.)

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* 11. Have you had genomic or biomarker testing done? (Genomic testing/biomarker testing looks for gene mutations in your cancer that could tell your doctor how your cancer might act.)

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* 12. How far do/did you travel for your doctor appointments?

  0-10 miles 11-20 miles 21-30 miles 31-40 miles 41-50 miles 50+ miles I don't/didn't have these appointments
Urology 
Medical oncology 
Radiation oncology 
Imaging 
Blood work 
Nearest hospital you go to or can go to

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* 13. Do/Did you have a hard time getting to and from your health care appointments?

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* 14. As a result of the COVID-19 pandemic, did any of your in-person appointments related to your prostate cancer become telehealth or telemedicine visits?

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* 15. As a prostate cancer patient, what is most important in the health care services you receive? Please rank the items below with 1 being the most important.

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* 16. How well-informed and prepared were you for your treatment plan?

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* 17. What, if anything, would have prepared you better? Check all that apply.

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* 18. How well informed were you about possible side effects of your treatment(s)?

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* 19. What, if anything, would have prepared you better for side effects related to your treatment(s)?

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* 20. A multidisciplinary team involves a range of health professionals, from different specialties, working together to deliver comprehensive patient care. 

Was your care delivered by a multidisciplinary team?

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* 21. My multidisciplinary team consists/consisted of: (Check all that apply)

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* 22. My urologist/oncologist kept my primary care provider informed of my prostate cancer diagnosis and treatment plan.

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* 23. BEFORE YOUR TREATMENT(S), what kinds of visits did you have with your care team?

  Face to face discussion  Face to face teaching  Virtual visits Did not have this type of appointment
Urologist/Surgeon
Medical Oncologists
Radiation Oncologists
Alternative medicine (acupuncture, naturopath, etc.)

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* 24. BEFORE YOUR TREATMENT(S), what kinds of information did you receive from your care team?

  Written materials (pamphlets, information sheets, etc.) Videos Online resources No information received from this type of appointment Did not have this type of appointment
Urologist/Surgeon
Medical Oncologists
Radiation Oncologists
Alternative medicine (acupuncture, naturopath, etc.)

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* 25. How well do you understand the various types of prostate cancer treatment?

  Understand well Understand somewhat Do not understand well Do not understand at all
Traditional surgery
Robotic surgery
Watchful waiting
Active surveillance
Brachytherapy
Traditional radiation therapy
Chemotherapy
Hormone therapy (or ADT)
Immunotherapy
Targeted therapy
Radioligand therapy (RLT)
PARP inhibitors
Supportive care (palliative or hospice care)

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* 26. What treatment(s) have you received for your prostate cancer? Check all that apply.

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* 27. Do you feel you were given the pros and cons of all available treatment options before making your treatment decision?

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* 28. I was/am satisfied with the treatment information I was provided prior to treatment.

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* 29. If you would have liked more information prior to treatment, what do you wish could have been provided?

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* 30. How much do you feel you participated in deciding on your treatment plan?

0% my decision 100% my decision
Clear
i We adjusted the number you entered based on the slider’s scale.

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* 31. Who participated in your treatment decision-making? Check all that apply.

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* 32. How do you prefer to make treatment decisions?

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* 33. Where and how do you prefer to find and receive information related to prostate cancer? Check all that apply.

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* 34. I understand my cancer and what it could do in the future: 

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* 35. When wanting to understand what might happen in the future related to my cancer, I would like to gather information through: (Check all that apply)

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* 36. What, if any, were your barriers to receiving care for your prostate cancer? Check all that apply.

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* 37. As a result of your prostate cancer diagnosis, how much difficulty have you had paying your bills?

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* 38. What prostate cancer information do you wish there were more of? Check all that apply.

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* 39. When were clinical trials discussed with you?

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* 40. Who initiated the conversation about clinical trials?

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* 41. Did you participate in a clinical trial? Why or why not?

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* 42. Please share any additional information you think might help a future prostate cancer patient in their treatment journey.

0 of 42 answered
 

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