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Register Your Case of DRESS Syndrome

DRESS Syndrome (Drug Reaction with Eosinophilia and Systemic Symptoms) — also known as Drug-Induced Hypersensitivity Syndrome (DIHS) — is a potentially life-threatening delayed drug reaction that can appear weeks after starting a medication. DRESS can affect multiple organs and cause a wide range of body responses, often making it difficult to recognize and diagnose.
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It is estimated to occur in 1 in 1,000 to 1 in 10,000 exposures to certain high-risk medications.
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Currently, there are very few large databases that collect information about DRESS cases. By registering your case with us, you help improve understanding of DRESS — including the drugs that can cause it and the complications patients may experience.
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We work with medical researchers studying the genetic, immune, and other aspects of DRESS to learn more about the condition and its long-term effects. With your permission, we may contact you about a study that could be relevant to your case.
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Your privacy matters.
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We never share any personally identifiable information — including with researchers — without your explicit permission. If a relevant study becomes available, the DRESS Syndrome Foundation will contact you first to ask whether you’d like to participate or be connected with the research team.
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To advance research on DRESS and keep our community informed, we may share summary data or non-identifying details with researchers or, when appropriate, with the public.
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Thank you for helping to expand knowledge of DRESS Syndrome and improve care for those affected by it.
1.Patient's Name:
2.In what state do you live?
3.In what country do you live?
4.At what email address would you like to be contacted?
5.What is your gender?
6.What is your age?
7.Please describe your race/ethnicity.
8.Did patient survive?
9.Were you diagnosed by a physician with DRESS Syndrome?
10.In what month and year did you first become ill with DRESS Syndrome?
11.Were you hospitalized?
12.What drug(s) is believed to have induced your DRESS Syndrome?
13.Were you tested for HHV-6 (human herpes virus 6) viral reactivation?
14.Was your HHV-6 test positive for reactivation?
15.What treatments have/did you receive during your acute stage of DRESS?
16.Did you experience a relapse or recurrance of symptoms either during or after your treatment for DRESS?
17.Are you still being treated for your symptoms with steroids or other medications? Please specify.
18.Do you have any short or long term complications from DRESS Syndrome such as thyroiditis, auto-immune disease, diabetes, Graves' disease or other? Please specify.
19.Have you experienced any of these emotional and psychological conditions due to having DRESS Syndrome?
20.Would you be interested in participating in research studies on DRESS Syndrome?
21.Do you give permission for the DRESS Syndrome Foundation to contact you with follow-up communications regarding your individual case, medical studies, and updates about the Foundation's work?(Required.)
For internal DRESS Syndrome Foundation use only. No participant response needed to Q22.
22.Internal Code
Current Progress,
0 of 22 answered
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