Question Title

Thank you for taking the time to complete this survey. By sharing your opinions and experiences, you will help Family Carers Ireland advocate for greater recognition and support of family carers.

What is the purpose of this research?
This is Family Carers Ireland's first nationwide survey into the experiences of family carers who provide regular unpaid help for a friend or a family member with a long-term illness, health problem or disability.

Why have I been asked to take part?
You are invited to take part in this survey if you are currently looking after, or giving any help or support to family members, friends, neighbours or others (adults or children) because of either a long-term illness, physical or intellectual disability or mental ill-health or problems related to old age. We would still like you to fill in this form even if the person you care for is in hospital or has moved into a care home. Please do not complete the survey if you are a care professional, such as a paid home care worker, a Care Assistant or a nurse. 

What if I don’t want to take part?
You are under no obligation to take part. Your participation is completely voluntary. If you do not wish to take part, please do not complete the survey.

What exactly will I be required to do?
You will be asked to answer a series of questions about your experience of being a family carer. This should take between 25-30 minutes to complete. The survey closes on Monday 17th February. Please only complete the survey once.

Is there any risk to me participating? 
There are no direct risks to you associated with taking part in the research. Your decision to participate (or not) will in no way impact your current or future relationship with Family Carers Ireland. Sometimes thinking about the sort of issues raised in this survey can create some uncomfortable or distressing feelings. If you need to talk to someone about this, please call our National Freephone Careline (1800 24 07 24).

How exactly will we protect your privacy?
All questionnaires are anonymous. Your identity will not be available to anyone as all surveys are anonymous. Your responses cannot be traced back to you. Please do not write your name anywhere on the survey. Data collected from this survey will be stored on an encrypted and password protected computer. Only the Family Carers Ireland research team will be able to access the dataset. These procedures have been reviewed by Family Carers Ireland’s Data Protection Officer. For more information, see our Privacy Policy.

How will the results of the research be shared?
Your unidentifiable responses will be used in reports and presentations stemming from the research. We will publish the top-line results in our ‘State of Caring’ report in June 2020 on the Family Carers Ireland website (

What do I do if I want to stop half way through?
If you wish to stop completing the questionnaire, please close your web browser without completing the questionnaire and your responses will be deleted. However, once your questionnaire has been submitted we will be unable to remove your data from the study as we will be unable to identify your responses.
Who should I contact if I have more questions or concerns?
Please contact Dr Nikki Dunne, Research Officer with Family Carers Ireland ( or 01-670 5976). If you need any help to understand or complete this survey, please contact us on our:

National Freephone Careline
1800 24 07 24

By clicking to the next page, you indicate that:
  • You have read the information above
  • You voluntarily agree to participate
  • You are over 18 years old
5% of survey complete.