Creating Tools for our Genomic Diaries

In this survey, we welcome your insights and we will continue to share the results with you, the members of our cystic fibrosis community.

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* 1. Are you a Patient or a Caregiver?

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* 2. Name a CF Genetic Mutation.

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* 3. How valuable is it to you to be able to see exactly how your data is being used and what was done with your data? (workflow information)

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* 4. How valuable is it to you to be able to track who has used your data in an analysis situation (data provenance)?

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* 5.  Would the ability to have workflow information and data provenance affect your decision to let your data be used?

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* 6. Is this a feature you're willing to pay for?

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* 7. What country or state in the United States are you from?

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* 8. Please add your comments and concerns about this topic  Your Data:  Provenance and Workflow

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* 9. Optional:  Leave your email address and if you are the 25th, 50th, 75th, 100th participant we will email you a $25.00 gift card

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