ABLE NH believes in the good work and values-based missions of our 10 independent, non-profit, locally run Area Agencies, NH's service delivery system. As part of its effort to support a service delivery system that is inclusive and continuously improving, ABLE NH is conducting the following survey to gather family input on a variety of subjects. As you may be aware, the service delivery system for individuals with developmental disabilities and acquired brain disorders has faced numerous challenges in recent years, including funding challenges, managed care legislation, and more recently, federal regulatory mandates regarding case management and direct service provision that have the potential to impact the current Area Agency System.
As an independent voice for the disability community, ABLE NH is collecting data to ensure that public officials receive your input when deciding upon any potential legislation or other regulatory changes that may impact your life. When it comes to services that support families and individuals with disabilities, your opinion counts, and it deserves attention.
We thank you for taking valuable time to complete the survey. Your responses will be confidential, however if you would like to speak with someone about any of the items listed in the survey or would like more general information please feel free to contact ABLE NH. Thank you for taking the time to share your ideas.

* I am a (check all that apply)

* Myself or my family member with a disability receive services from (check all that apply)

* Given the NH's vision (in RSA 171 A) of a locally-based system for people who experience disabilities, how important is it that there be local offices across NH and local control in the service delivery system?  (as opposed to state-wide or out-of-state control of services)

* How important is person-centered planning in the delivery of services?

Person-Centered Planning is a problem-solving process that is on-going where plans are developed around the needs and wants of the person receiving services.  Plans are designed to develop relationships, participate in community, work to gain increase in control in own life and develop skills to achieve these goals.  To learn more about Person Centered Planning, click here and watch this short video.

* How important is conflict-free case management?

The list of requirements on conflict-free case management from Centers from Medicare and Medicaid Services is extensive.  The key component we are focusing on here is that the service coordinator/case manager of services is not employed by any agency that has a financial or personal interest in providing services.

* Should the definition of conflict-free case management recognize that the financial incentive for share holders and officers in certain types of managed care models represents a financial conflict of interest to individuals who depend on state and Medicaid funding for services?  

* How important is it to have a full-time dedicated, trained Transition Specialist to assist with entry into adult services?

* How important is customized/supported meaningful employment?

* How important is  "experiential choice" in planning for services (transition, employment, housing or day services)?  

Experiential learning and choice allows participants to learn in a setting where they are allowed to "experience" all aspects of a particular day service program, home provider, employment or educational opportunity.  Further, it allows time to reflect on all aspects of the experience, from the task of the job itself, perhaps classroom work, to the social and cultural nuances within the home, day program, work place or school.  

* When it comes to accountability in dealing with service issues that come up, I feel that the current area agency system allows for complaints and addresses those complaints quickly.

* How much training does your Direct Support Professional receive in addition to the on the job support you provide?

* What methods of training do you believe are most effective for DSPs?
Please rank with 1 being the most effective training method.

* How important is it that our service delivery system have a uniform accountability structure that measures outcomes like quality of employment/education services; access to community; and home care? In other words, using the same measurement tool, should all Area Agencies have to account for their effectiveness?

* What would you like to see addressed in the delivery of services that we may not have mentioned?  And if you would like to participate in conversations hosted by ABLE NH on possible changes to our area agency system, please leave us your name and email.  Thank you!

T