Protocol: A-LIST What Matters Most Insights Survey Series (The A-LIST WMM Insights Series)
Protocol Number: A-LIST 1
Study Classification: Series of questionnaires
Indication Studied: Alzheimer’s and other dementias, mild cognitive impairment, and general brain health
Study Author: Theresa Frangiosa, MBA
Sponsor: UsAgainstAlzheimer’s (UsA2)
You are being asked to participate in a research study because you have insights on what matters to individuals who care about brain health, are worried about their cognition, who perceive themselves to be at risk for Alzheimer’s disease, who may be at risk for underlying disease pathology, who self-identify as having a diagnosis of mild cognitive impairment, or who self-identify as current or former caregivers of patients with Alzheimer’s disease or other dementia or mild cognitive impairments.
This is a consent form. It gives you information about this study. This study is not a single event. Rather, it is a study that will be composed of a series of surveys conducted over months and years ahead as described more fully below (the “Study”).
Before you decide if you want to be a part of the Study, we want you to know the purpose of the Study, how it may help you, any risks and benefits to you, what other choices you may have, and what is expected of you. The Study staff are available to talk with you about this information. You are free to ask questions about the Study at any time. If you agree to take part in the Study, you will be asked to verify that you accept the terms outlined in this consent form. Before you learn about the Study, it is important that you know the following:
* Your participation is entirely your choice.
* You may or may not benefit from taking part in the Study, but knowledge gained from your participation may help others.
It is important you read and understand the information about the Study before you take part. If you have any questions about the Study and your rights, please contact UsAgainstAlzheimer’s at 888-818-8722 and leave a message. Your call will be returned within 24 business hours.
WHO IS CONDUCTING THIS RESEARCH?
The Study is sponsored by UsAgainstAlzheimer’s (“Sponsor”) and is conducted as part of Sponsor’s Alzheimer’s Patient and Caregiver Engagement (AD PACE) initiative. Sponsor receives funding through a range of sources. These include funds from the government, foundations, industry, and private donors, such as Sponsor, The LEAD Coalition (Leaders Engaged on Alzheimer’s Disease), Biogen, Eli Lilly and Company, Home Instead, Lundbeck Pharmaceuticals, and Otsuka Pharmaceuticals.