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This survey has been developed by the European Federation of Neurological Associations (EFNA) to assess and quantify the invisible issues affecting neurology patients and caregivers in Europe.

The aim is to identify, measure and report on these invisible issues (for example pain, stigma, sleep problems, fatigue, cognitive difficulties) as faced by those affected by neurological conditions, either as patients or care partners.

Data generated through this survey can be used to create awareness of these issues and to advocate for change to address them.

Findings from the survey will be published on the EFNA website later this year, and included for presentation at the next meeting of the MEP Interest Group on Brain Health and Neurological Conditions.


This survey is open to anyone over the age of 18 who is living with a neurological condition, or who is a caregiver to someone living with a neurological condition, that resides in Europe.

The survey should take approximately 15 minutes to complete.

Your participation in this survey is voluntary and you can withdraw at any time.

The survey is completely anonymous. The data will be stored and analysed by EFNA, as per our data protection and privacy policies.

By clicking 'next' below you agree to your participation in the survey and confirm that you have read and understood the information provided.
4% of survey complete.