Your Input is Needed - Important Opportunity to Influence SCI Research

This is an opportunity for multiple SCI-led organizations, individuals living with SCI, and families/caregivers of people living with SCI to come together on a topic where TOGETHER we can have a stronger impact than alone.

The National Institutes of Health (NIH) is the largest funder of SCI research in the United States, and perhaps the world.  Their funding also has the potential to impact other funding agencies inside and outside the United States.  The NIH is hosting a meeting in February 2019 bringing together the SCI research community and many other SCI research funding organizations from around the world.  According to the NIH meeting organizers: 

“The goal of the 'SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research' conference is to initiate discussion across the SCI research community to launch a new decade of research that disrupts traditional barriers and brings about collaborative efforts to address the key research questions in spinal cord injury research.  This conference is designed to be a comprehensive stakeholder’s meeting to bring diverse experience and voices together with this common goal.  The participants will be challenged to critically evaluate the state of the science, assess areas of scientific, technological and community readiness, and identify the collaborations needed to change the trajectory of research and clinical opportunities for people with SCI.”

The North American SCI Consortium has been asked to lead one session at this meeting to voice concerns of the community of people living with SCI and their families and caregivers.  Below are 3 questions/topic areas for this session.  We are seeking your input to bring forward during the session.  Your voice is important and we want it to be heard!

To participate in this survey you must have a spinal cord injury or be a family member or caregiver of someone living with SCI and be at least 18 years old.  It will take you between 5 and 10 minutes to provide your input.