For many years, SBRN has been providing Family Support services, funded primarily through the NJ Division of Developmental Disabilities (DDD).  However, DDD is now changing how they provide services and SBRN will no longer be receiving funding for these types of services.  In planning for the future of SBRN, with less funding, we would like to determine which services are most needed and most helpful. 

* 1. Are you filling out this survey for yourself or on behalf of someone else?

* 2. Which county do you live in?

* 3. Nursing Support & Training - Check the appropriate box for each service

  I have used this service and I'm interested in continuing I have used this service but do not plan to continue I have not used this service, but might use it in the future Not interested/Not applicable
Training and Assistance with Bowel/Bladder Issues
Guidance on Skin Integrity and Wound Care
Instruction on Treatment Regimens & Following Up with Doctor's Orders
Assistance with Medical Coordination
Healthy Living, Nutrition & Weight Management
Nursing Support at the Kessler Spina Bifida Clinic

* 4. Social and Support Services - Check the appropriate box for each service

  I have used this service and I'm interested in continuing I have used this service but do not plan to continue I have not used this service, but might use it in the future Not interested/Not applicable
Help with independent living skills
Help with finding and applying for services and benefits
Assistance with insurance issues
Support in the schools with IEP's or presentations to school personnel
Tele-Support Groups (such as the Golden Girls)
Information & Referral
Special Medical Needs Fund

* 5. Social, Recreational & Educational Events - Which of the following would you like SBRN to continue to offer?

  Yes Maybe No
Empowerment Walks (Stroll & Rolls)
Spina Bifida Conference
Weekend Adult Empowerment Retreats
Holiday Party
Activities (such as ice skating/sledding, water play, yoga, visits to museums, zoos)
Newsletters (Empowerment Zone)

* 6. MEDICAID SERVICES (For Adults who are Medicaid & DDD Eligible)

NJ DDD is switching to a new Supports Program. The services offered through this program are very specific. SBRN is considering offering some of these services.  If you or your family member are an adult, who is DDD eligible and has Medicaid, please indicate whether you might utilize these services if SBRN offers them.

  Definitely Interested Might be interested Not interested
CONSUMER BASED SUPPORTS - Direct support, in the home or out, to provide training in basic self-care, social skills or activities of daily living, or to help with community activities.
CAREER PLANNING - A focused, time-limited service that assists participants in identifying a career direction and developing a plan for achieving employment.
INTERPRETER SERVICES - Interpreter services for Spanish speakers, provided in the home or the community for communicating with providers and community resources.
NATURAL SUPPORTS TRAINING - Training services for any unpaid caregivers on treatment regimens, safety issues and use of equipment.

* 7. What have we missed? What else would you like to see us offer?

* 8. THANK YOU FOR PARTICIPATING! We greatly appreciate your input.  We will use the survey results to help guide our planning for the future of SBRN Services. 

If you have any questions, please contact us at: 908-782-7475 or info@theSBRN.org. Please use the box below for any other comments.

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