ABOUT THIS INDEPENDENT STUDY

This survey aims to find out whether you believe your organization is regarded as an ESSENTIAL STAKEHOLDER in healthcare systems—and the challenges that your organization faces in achieving your goals.

Thank you for participating in this short PatientView survey.

You will be anonymous in the survey results (unless you tell us at the end of the survey that you prefer your organization to be attributed as a survey participant).

Please note that, when you finish this survey, your responses will not be registered until you click the “Done >>” button at the bottom of this webpage.

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Firstly, four brief profiling questions

These questions will help us understand THE TYPES of organizations answering the survey, and allow us to make more sense of the results.

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a.) Please describe, in the box below, your organization’s MAIN SPECIALTY.

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b.) In which country is your organisation BASED or headquartered?

(If you are an organisation with an international remit, please respond on behalf of the country in which you, as a respondent, reside.)

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c.) What is the GEOGRAPHIC REACH of your organization?

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d.) [Please skip this question if not relevant to your organization]
During the past twelve months, approximately HOW MANY PATIENTS did your organization ...

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Seven questions about your patient organization’s role in healthcare

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Question 1 of 7.
Do you believe, in 2024, that YOUR PATIENT ORGANIZATION is an essential stakeholder within healthcare systems?

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Question 2 of 7.
Do you believe that your organization has an INFLUENCE on the following?

  Yes. Sometimes. No. No—but we would like to. Not relevant to us. Do not know.
Government healthcare policymaking.
Drug approvals.
Drug reimbursement (may include patient evaluation of new medicines).
Patients’ access to medicines.
Healthcare provision (for instance, care pathways).
Patients’ access to healthcare.
Patient information.
Patient education (for instance, health literacy).
Education of healthcare professionals.
Drug research.
Drug development (clinical trials; ‘real-world’ evidence).

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Question 3 of 7.
Do the FOLLOWING HEALTHCARE STAKEHOLDERS believe that your organization is essential to healthcare systems?

  Yes. Some do/sometimes. No. Not relevant to us. Do not know.
Patients / carers.
Academics / scientific bodies.
Healthcare professionals.
Regulatory bodies (eg, FDA; Health Canada).
Health Technology Assessment (HTA) authorities.
National-government health committees.
Local-government health committees.
Health insurers.
Medical-device companies.
Pharmaceutical companies.
Pharmacists.
The media.

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Question 4 of 7.
Do the following healthcare stakeholders provide SUPPORT to your organization’s work?

Please take “SUPPORT” to mean:
Helpful input or assistance provided by a healthcare stakeholder to your organization.

  Yes/some. NO support. NO support—but would like some from them. Not relevant to us. Do not know.
Academics / scientific bodies.
Consultants / specialists.
Primary-care physicians (GPs).
Specialist nurses.
General nurses.
Regulatory bodies (eg, FDA; Health Canada).
Health Technology Assessment (HTA) authorities.
National-government health committees.
Local-government health committees.
Health insurers.
Medical-device companies.
Pharmaceutical companies.
Pharmacists.
The media.

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Question 5 of 7.
Do any of the following act as BARRIERS preventing your organization from fully participating in healthcare systems?

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Question 6 of 7.
a.) Does your organization carry out any of the following SERVICES TO PATIENTS?

  Yes. No. No—but would like to. Not relevant to us. Do not know.
Offering healthcare advice.
Hosting telephone helplines.
Delivering treatment / care to patients.
Supporting patients experiencing economic hardship.
Arranging peer-to-peer support.
Supporting drug-treatment clinical trials.
Undertaking our own healthcare research.

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b.) Does your organization carry out any of the following POLICY ACTIVITIES?

  Yes. No. No—but would like to. Not relevant to us. Do not know.
Raising awareness of the needs of patients / carers.
Advocating for better patient care.
Advocating for better access to medicines.
Representing patients’ interests to drug-regulatory authorities.

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Finally, question 7 of 7.
What three types of EXTRA SUPPORT could healthcare stakeholders provide your organization to help you the most?

1.

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2.

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3.

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Thank you.

Would you like YOUR ORGANIZATION to be attributed as one of the participants to the survey, listed at the end of the published report on the survey’s results (September 2024)?

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As a patient-group representative responding to this study, you are ENTITLED TO RECEIVE A FREE COPY of the survey’s results upon publication.
Would you like to receive a free copy?

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If “Yes” to either, please complete the four questions about your contact details, below (you will still be anonymous).

a. What is your name?

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b. What is the name of your organization?

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c. What is your title / position in the organization?

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d. To which email address should PatientView send the link to the report?

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Thank you for expressing your opinions.

That concludes this June-August 2024 PatientView survey on your patient organization’s role in healthcare.

End of survey.

Please click “Done >>”, below (otherwise your responses will not be saved).

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