Participant Information Sheet and Consent Form

This survey relates to the experience of people who use assistive technology. Before commencing the survey questions, you will be provided with information about the project and asked to consent. This information is shown below.  Please read through this information and then answer the question at the bottom of the page. If you agree to participate, you will be taken to the first survey question.

People who use assistive technology: Considerations for occupational therapy practice.
 
PRE-SURVEY INFORMATION FOR PARTICIPANTS

What is this research about?
The purpose of this study is to understand the lived experience of people who use assistive technology (AT).

This research project seeks to:
·         Identify the extent to which people who use AT are able to engage in day to day activities.
·         Identify factors which influence how people make decisions about their AT needs.
·         Understand how occupational therapists can support people to obtain AT under the National Disability Insurance Scheme (NDIS).

This study is being completed by Ms Alisha Olds as part of the Bachelor of Occupational Therapy (Honours) Program at Griffith University. The research is being supervised by Dr Michelle Bissett, Professor Matthew Molineux (both from Griffith University) and Mr David Jefferies (Invacare).

There will be two methods of data collection for the research:
1.    An online survey
2.    Face-to-face or telephone interview

To understand your perspective, we are asking you to consider participating in an online survey. At the end of the survey, you will have the option to indicate your willingness to participate in an interview. You will do this by providing your contact information and the researcher will make contact with you. Participation in either the survey or the interview is completely voluntary.   

The basis by which participants will be selected
To participate, you must be over the age of 18 and be living with a disability. Only people who have previously obtained assistive equipment have been asked to participate in the study.

What you will be asked to do?
We are asking you to complete an online survey which takes approximately 20-25 minutes to complete. For those who agree to participate in an interview, you will speak individually with the researcher for approximately 60 minutes at a time that is convenient to you.

Risks to you
There are no foreseeable risks or disadvantages in taking part in this research apart from the time it will take you to participate. 
 
The expected benefits of the research
There are likely to be no direct benefits to you. However, the results of this study will provide insight into the factors which influence how people make decisions about the AT they require. This knowledge will be useful for occupational therapists as it will enable them to gain an understanding of how they can best support people when working under the NDIS.
Your participation is voluntary
Your participation in this research is voluntary. If you do not wish to take part, you do not have to. You do not have to answer every question in the questionnaire unless you wish to do so. Your decision whether to take part or not to take part, will not affect your relationship with any health care service or Griffith University. You are free to withdraw from the research at any time and you do not need to explain your reasons for doing so.

Confidentiality
This study invitation has been sent to you on behalf of the research team. The Griffith University researchers do not have access to the names or contact details of any potential participants. Your responses will be confidential, and you will not be identified in any data, publications or presentations. Griffith University will hold the original data from the survey or interviews, which will be kept secure within University premises and infrastructure and used only for the research. At the completion of the project the Chief Investigator will store research materials and data for a minimum of five years after the end of the year of publication of the last refereed publication that is based on the data, or longer if dictated by the publication’s editorial policy. After this period, all records will be deleted by the Chief Investigator.

Publication
No information that could potentially lead to identification of you will be included in any presentations, reports or other publications arising from this study.

Questions / further information
If you have any questions regarding the study, please feel free to contact the student researcher, Alisha Olds on this email address: alisha.olds@griffithuni.edu.au 

The ethical conduct of this research
Griffith University conducts research in accordance with the National Statement on Ethical Conduct in Human Research. If you have any concerns or complaints about the ethical conduct of the research project they should contact the Manager, Research Ethics on 3735 4375 or research-ethics@griffith.edu.au. This project has been considered and approved by the Griffith University Human Research Ethics Committee (reference 2016/926).

Feedback to you
The findings of the research project will be presented at conferences and published in relevant professional peer reviewed journals. If you are interested in receiving a summary of the study results, you can request this by providing your email address at the end of the survey. Please note that it may be approximately 12 months before you will be contacted with a summary of the study results.

Privacy Statement – non-disclosure
The conduct of the research may include involvement in an online survey, or face to face or telephone interview. The information collected is confidential and will not be disclosed to third parties without your consent, except to meet government or legal authority requirements. Your anonymity will be safeguarded at all times. For further information consult the University’s Privacy Plan at   http://www.griffith.edu.au/about-griffith/plans-publications/griffith-university-privacy-plan or telephone (07) 3735 4375.


CONSENT TO PARTICIPATE IN ONLINE SURVEY


Research Team:
Supervisors: Dr Michelle Bissett, Dr Matthew Molineux and Mr David Jeffries
Student researcher: Ms Alisha Olds
Discipline of Occupational Therapy, Griffith University

Contact information:
Dr Michelle Bissett
Phone: (07) 5552 9573, Email: m.bissett@griffith.edu.au
Professor Matthew Molineux
Phone: (07) 5552 7853, Email: m.molineux@griffith.edu.au
Alisha Olds
Email: alisha.olds@griffithuni.edu.au
 
By completing the questionnaire, I confirm that I have read and understood the Participant Information Sheet and, in particular, have noted that:

- I understand that my involvement in this research will involve completing an online survey which takes approximately 20 minutes to complete;
- I have had any questions answered to my satisfaction;
- I understand the risks involved;
- I understand that there will be no direct benefit to me from my participation in this research;
- I understand that my participation in this research is voluntary and will not affect my relationship with any health care or equipment provider;
- I understand that if I have any additional questions I can contact the research team;
- I understand that I am free to withdraw at any time, without explanation or penalty;
- I understand that I can contact the Manager, Research Ethics, at Griffith University Human Research Ethics Committee on 3735 4375 (or research-ethics@griffith.edu.au) if I have any concerns about the ethical conduct of the project; and


I agree to participate in the project. 
o   Yes (takes participant to Q1 of survey)
o   No (exits participant out of survey and thanks them for their time)

This study has been approved by Griffith University Human Research Ethics Committee, approval number 2016/926.

* 1. I agree to participate in the project

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