This is an open-ended survey conducted as part of Kidney Health Australia’s Youth Program national consultation process.

This is an opportunity to have your say, voice your opinions and hopefully give us your lived experience and information which will assist us to support and improve services to you.

We are keen to hear directly from young people aged 15 – 24 living with kidney disease or if you are now older but experienced living with kidney disease during this age range! We also want to hear from the parents or carers of young people.

This survey will help us identify what is most important to you in your kidney health journey and what can be improved to best help young people living with kidney disease.

We are interested in the many issues experienced around living with kidney disease including navigating adolescence, moving towards self-management, transition and transfer from children's to adult healthcare or just being a young person in the adult healthcare system.

Your privacy is our priority.
Kidney Health Australia abides by the National Privacy Principles in all its dealings with our members and the public. Any information you choose to provide will help us inform and develop a program to assist young people with kidney disease and will be treated as confidential. Participation in this survey and any Kidney Health Australia activity is optional and your personal details will not be given to any external organisation without your permission. For more information regarding the Kidney Health Australia Privacy Policy please visit

Please feel free to complete this survey with the help of a carer or caregiving family member.

This survey will take approximately 15 minutes.

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* 1. OPTIONAL: If you would like to be contacted by staff or representatives of Kidney Health Australia about participating further in the Youth Program, please provide your contact details below. You will be able to opt out at any time. This question will be asked again at the end of the survey if you wish to skip it now and complete it later. 

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* 2. Please provide your postal code to allow us to identify which areas of Australia our survey is reaching.

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* 3. What is your age? Please respond with a whole number.

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* 4. Do you speak a language other than English at home?

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* 5. Are you of Aboriginal or Torres Strait Islander descent?

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* 6. Are you completing this survey with the help of a carer or caregiving family member?

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* 7. What best describes you?