United Mitochondrial Disease Foundation - Submit a Resource

The United Mitochondrial Disease Foundation currently has a national resource guide web page as well as a listing of state resources. In an effort to better serve our mitochondrial community, we would like your help. If there is a resource you feel would be helpful to patients and families, we encourage you to submit it to us for consideration and we will post online as soon as possible.

Not sure of what types of resources you could suggest? Our current resources include, but are not limited to, the following: trach care, developmental disability care, canine companions, care giving, grief, special needs, epilepsy, advocacy, financial, fatty acid disorders, gene tests, genetics, insurance, Medicaid, Medicare, networking, hospitality houses, federal and state government agencies, tube-feeding, adaptive equipment, diet & nutrition, vacations/camps/sports/travel assistance, and much more. Resources can be on the local level or national level. We hope to add a UMDF Book Corner soon so please submit suggestions for this document as well.

To provide a potential resource, simply fill out this form...

Question Title

* 1. In case we have questions about the resource, please provide your name and email.

Name:

Email Address: *

Question Title

* 2. Resource Information:

Name of Resource:

Address 1:

Address 2:

City/Town:

State/Province:

ZIP/Postal Code:

Country:

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* 3. Additional Information:

Web Link:

Main Business Number:

Fax Number:

Toll Free Number:

Email:

Question Title

* 4. Description of Services and/or Resource:

Question Title

* 5. Is this a local or national resource?

Local

National

National but has local contacts

If local, which state(s) does it serve?