Thank you for your interest in participating in our research study. The purpose of the study is to understand, describe, and report changed family dynamics and the status of the children with autism during the Covid-19 crisis.  Please answer the following questions to the best of your ability.  It should take most parents about 30 minutes to complete this survey.  Your participation in this study is your choice. You may skip any questions that makes you feel uncomfortable and you are free to withdraw from the study at any time without penalty. The risks involved with participating in this study are minimal, though it is possible you will experience stress recounting a challenging experience.  Potential benefits that you may receive from participation include contributing to local and national service development of supports for families with autism.

 

If you experience problems or have questions regarding your rights as a research subject, contact the Florida Atlantic University Division of Research at (561) 297-1383.  For other questions about the study, you should contact the principal investigator: Dr. Jack Scott, who can be reached at jscott@fau.edu.  By completing and submitting the attached survey, you give consent to participate in this study.  If you choose, you can print a copy of the consent statement for your personal records.

Question Title

* 2. What gender is you child?

Question Title

* 3. Please select your race/ethnicity.

Question Title

* 4. How much special support does your child generally require? Please select the one choice which offers the best description.

Question Title

* 6. Section 2- Tell us about your family:
Please select the choice that best describes your family.

Question Title

* 7. How many caregivers are living in the home with the child/children?

Question Title

* 8. Tell us about where you live. Select the choice that best describes your location?

Question Title

* 10. This question is for Florida residents only.  Are you registered with one of the seven CARD programs in Florida? If so, please select your CARD center:

Question Title

* 11. Approximately how much of your total family income, if any, is lost as a result of the COVID-19 crisis?

Question Title

* 12. Are you able to stay at home with your child with autism?

Question Title

* 13. What is your total family household income (pre-COVID-19)?

Question Title

* 14. Do any caregivers- those living with the family, having training as either medical providers or as teachers (pre-k - high school)

Question Title

* 16. Section 3- Educational Arrangements:
Does your child with autism receive exceptional student educational services (ESE) or special education?

Question Title

* 17. Had your child's teacher/school provided you with books and support materials to use during the COVID-19 crisis prior to school closure?

Question Title

* 18. Does your child's teacher/school provide online educational support during the COVID-19 crisis?

Question Title

* 19. If you answered yes to question 17, approximately how much educational benefit did your child receive as a result of online instructional services provided by their school?

Question Title

* 20. Is your child currently sharing information with you about their online educational requirements?

Question Title

* 21. Did your child's school/program/teacher offer the use of a computer, iPad, tablet or other electronic devices for your child's use during COVID-19?

Question Title

* 22. Did your child's school/program/teacher offer internet access to your family for your child's online education during COVID-19?

Question Title

* 23. As a parent of a child with ASD, how would your rate your ability to support your child's education during COVID-19?

Question Title

* 24. Schools use letter grades to evaluate children. For your child's district/school/teacher, what overall grade would you give them overall as it relates to your child's education during COVID-19?

Question Title

* 25. Many children with ASD have "related services" or school-provided therapies listed in their IEP. Please select the option which best describes the provision of these school services for your child during COVID-19.

Question Title

* 26. Does your child reside in a group home for persons with disabilities?

Question Title

* 27. How well did the leadership and staff of your child's group home do in providing a safe and secure living arrangement for your child with ASD during COVID-19? Please use the school grading approach with grades from A to F.

Question Title

* 28. Considering the overall COVID-19 situation, do you think it was/is a positive or negative for your family? Please share your thoughts on this if you would like to do so. 

Question Title

* 29. What more could your child's teacher/program have done to deliver instruction during the period of isolation. Please check all that apply:

Question Title

* 30. Section 4- Socialization:
How often is your child communicating with peers during the stay-at-home period? For this question, do not consider siblings as peers.

Question Title

* 31. How is your child presently communicating with non-sibling peers? (Select all that apply)

Question Title

* 32. In general, to what extent does your child's socialization with peers differ from before COVID-19?

Question Title

* 33. Describe your child's current communication with relatives that live outside of the home? (For example, a non-residential caregiver, grandparent, or cousin?)

Question Title

* 34. If you have more than one child in the home, describe the pattern of socialization between the children?

Question Title

* 35. Please describe the current general mood or climate in your home during COVID-19.

Question Title

* 36. Section 6- Child and Family Well-being:
Has your child shown a special interest in the COVID-19 virus?

Question Title

* 37.
This question relates to your child's level of stress or anxiety relating to the COVID-19 and stay at home situation. Please select the choice which best describes their current stress/anxiety level in contrast to pre-COVID-19 levels. 
My child is now:

Question Title

* 38. As the parent of a child with autism, how would you rate your own level of stress or anxiety now when compared to pre-COVID-19 levels? Please select the choice which best describes your current stress/anxiety level in contrast to pre-COVID-19 levels.

Question Title

* 39. The COVID-19 situation calls for social distancing and active efforts to avoid infection by COVID-19. This question relates to your child's ability or willingness to comply with COVID-19-safety behaviors like wearing a mask in public and frequently washing or sanitizing their hands. Please select the one choice which best describes their behavior in this regard.

Question Title

* 40. Do you see any positives emerging from this isolation period for your child with autism?

Question Title

* 41. Has anyone in your household become sick with COVID-19?

Question Title

* 42. If you answered yes to question 41 were other capable adult caregivers able to provide for your child with ASD during the illness of other caregivers?

Question Title

* 43. Did your child with autism become ill with COVID-19?

Question Title

* 44. Before the COVID-19 crisis, did your child with ASD receive any specialized therapies for his/her ASD? This question is focused on non-school therapies. 

Question Title

* 45. If you answered yes to the previous question, please select the most appropriate choice:

Question Title

* 46. Section 7- Additional Survey Questions:
How has your child reacted to the COVID-19 situation overall? For this question we are asking this in relation to your prediction of your child's behavior. Please select the best choice.

Question Title

* 47. What do you see as the positives or negatives of the COVID-19 situation on an overall basis for your family. Please share your thoughts on this.

Thank your for your valuable time and effort in completing this survey. We hope to summarize these responses and share them with the autism community. Your help is very much appreciated.
0 of 47 answered
 

T